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在马来西亚为慢性呼吸系统疾病患者开发基于家庭的肺康复计划:一项混合方法可行性研究。

Developing a home-based pulmonary rehabilitation programme for patients with chronic respiratory diseases in Malaysia: A mixed-method feasibility study.

机构信息

Department of Rehabilitation Medicine, Faculty of Medicine, Universiti Malaya, Kuala Lumpur, Malaysia.

Department of Primary Care Medicine, Faculty of Medicine, Universiti Malaya, Kuala Lumpur, Malaysia.

出版信息

J Glob Health. 2023 Oct 27;13:04099. doi: 10.7189/jogh.13.04099.

Abstract

BACKGROUND

The COVID-19 pandemic has underscored the importance of remote healthcare and home-based interventions, including pulmonary rehabilitation, for patients with chronic respiratory diseases (CRDs). It has also heightened the vulnerability of individuals with underlying respiratory conditions to severe illness from COVID-19, necessitating exploration and assessment of the feasibility of delivering home - pulmonary rehabilitation (home-PR) programmes for CRD management in Malaysia and other countries. Home-based programmes offer a safer alternative to in-person rehabilitation during outbreaks like COVID-19 and can serve as a valuable resource for patients who may be hesitant to visit healthcare facilities during such times. We aimed to assess the feasibility of delivering a home-PR programme for patients with CRDs in Malaysia.

METHODS

We recruited patients with CRDs from two hospitals in Klang Valley, Malaysia to a home-PR programme. Following centre-based assessment, patients performed the exercises at home (five sessions/week for eight weeks (total 40 sessions)). We monitored the patients via weekly telephone calls and asked about adherence to the programme. We measured functional exercise capacity (6-Minutes Walking Test (6MWT) and Health-Related Quality-of-Life (HRQoL) (COPD Assessment Test (CAT)) at baseline and post-PR at nine weeks. We conducted semi-structured interviews with 12 purposively sampled participants to explore views and feedback on the home-PR programme. The interviews were audio recorded, transcribed verbatim, and analysed thematically.

RESULTS

We included 30 participants; two withdrew due to hospitalisation. Although 28 (93%) adhered to the full programme, only 11 (37%) attended the post-PR assessment because COVID-19 movement restrictions in Malaysia at that time prevented attendance at the centre. Four themes emerged from the qualitative analysis: involvement of family and caregivers, barriers to home-PR programme, interactions with peers and health care professionals, and programme enhancement.

CONCLUSION

Despite the COVID-19 pandemic, the home-PR programme proved feasible for remote delivery, although centre-based post-PR assessments were not possible. Family involvement played an important role in the home-PR programme. The delivery of this programme can be further improved to maximise the benefit for patients.

摘要

背景

新冠疫情凸显了远程医疗和居家干预的重要性,包括肺康复,适用于慢性呼吸系统疾病(CRD)患者。它还使患有基础呼吸系统疾病的个体更容易因 COVID-19 而患上重病,因此需要探索和评估在马来西亚和其他国家为 CRD 管理提供居家-肺康复(home-PR)计划的可行性。在像 COVID-19 这样的疫情期间,居家计划为面对面康复提供了更安全的选择,并且可以作为在这些时候可能不愿意前往医疗机构的患者的宝贵资源。我们旨在评估在马来西亚为 CRD 患者提供 home-PR 计划的可行性。

方法

我们从马来西亚 Klang Valley 的两家医院招募了 CRD 患者参加 home-PR 计划。在中心评估后,患者在家中进行锻炼(每周五次,共八周(共 40 次))。我们通过每周的电话询问来监测患者,并询问他们对计划的遵守情况。我们在基线和九周后的 PR 后测量了功能运动能力(6 分钟步行测试(6MWT)和健康相关生活质量(HRQoL)(COPD 评估测试(CAT))。我们对 12 名有目的地抽样的参与者进行了半结构式访谈,以探讨他们对 home-PR 计划的看法和反馈。访谈进行了录音、逐字记录,并进行了主题分析。

结果

我们纳入了 30 名参与者;两名因住院而退出。尽管 28 名(93%)坚持了完整的计划,但只有 11 名(37%)参加了 PR 后评估,因为当时马来西亚对 COVID-19 的行动限制阻止了他们前往中心。定性分析得出了四个主题:家庭和照顾者的参与、home-PR 计划的障碍、与同龄人及医疗保健专业人员的互动以及计划的增强。

结论

尽管受到 COVID-19 大流行的影响,但 home-PR 计划仍可远程提供,尽管无法进行中心 post-PR 评估。家庭参与在 home-PR 计划中发挥了重要作用。可以进一步改进该计划的交付,以最大程度地使患者受益。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b35f/10602205/9c2a5aca50d2/jogh-13-04099-F1.jpg

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