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印度德里特发性肺纤维化患者居家肺康复的可行性与可接受性

Feasibility and acceptability of home-based pulmonary rehabilitation for individuals with idiopathic pulmonary fibrosis in Delhi, India.

作者信息

Hanif Humaira, Ahmed Obaidullah, Manifield James R, Shibli Mohd, Barradell Amy, Ahmed Zahira, Malcolm Dominic, Barton Andy, Talwar Deepak, Orme Mark W, Singh Sally J

机构信息

Metro Centre for Respiratory Disease, Metro Hospital and Heart Institute, Noida, India.

School of Allied Health Sciences, Galgotias University, Greater Noida, India.

出版信息

Chron Respir Dis. 2025 Jan-Dec;22:14799731251375043. doi: 10.1177/14799731251375043. Epub 2025 Sep 3.

Abstract

ObjectivesTo determine the feasibility and acceptability of home-based pulmonary rehabilitation (HBPR) for individuals with idiopathic pulmonary fibrosis (IPF).MethodsIn this single-arm feasibility trial, individuals with IPF were recruited from Delhi, India, to a 6-weeks HBPR programme using a paper-based manual. Primary outcomes were feasibility (classified by ≥60% of eligible patients recruited and ≥70% of recruited patients completing the follow-up assessment) and intervention acceptability (semi-structured interviews).ResultsOut of 42 screened, 36 individuals were eligible (86% of screened), and 30 were recruited (83% of eligible, 71% of screened; 60 ± 13 years, 53% female), with 25 completing their follow-up assessment (83% of recruited). HBPR was generally well-accepted, with qualitative themes including: 'facilitators and barriers to HBPR' (family support and flexibility of home environment were facilitators whereas lack of supervision and inability to follow a routine were barriers), 'perceived changes from taking part in HBPR' (improved exercise capacity, breathlessness, and independency), and 'how to improve HBPR in the future' (translating the manual into various languages, and incorporating into a more hybrid approach).ConclusionHBPR using a paper-based manual was feasible and acceptable, potentially suitable for improving the uptake and completion of PR for individuals with IPF in Delhi, India.

摘要

目的

确定家庭肺康复(HBPR)对特发性肺纤维化(IPF)患者的可行性和可接受性。

方法

在这项单臂可行性试验中,从印度德里招募IPF患者,采用纸质手册进行为期6周的HBPR计划。主要结局指标为可行性(定义为≥60%的符合条件患者被招募且≥70%的被招募患者完成随访评估)和干预可接受性(半结构化访谈)。

结果

在42名筛查对象中,36人符合条件(占筛查对象的86%),30人被招募(占符合条件者的83%,占筛查对象的71%;年龄60±13岁,女性占53%),其中25人完成了随访评估(占被招募者的83%)。HBPR总体上被广泛接受,定性主题包括:“HBPR的促进因素和障碍”(家庭支持和家庭环境的灵活性是促进因素,而缺乏监督和无法遵循常规是障碍)、“参与HBPR后的感知变化”(运动能力、呼吸困难和独立性改善)以及“未来如何改进HBPR”(将手册翻译成多种语言,并采用更综合的方法)。

结论

使用纸质手册的HBPR是可行且可接受的,可能适合提高印度德里IPF患者肺康复的参与率和完成率。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4c59/12409018/8dce6aed80ff/10.1177_14799731251375043-fig1.jpg

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