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家长对新冠疫情对土耳其自闭症谱系障碍儿童影响的观察

Parent observations about the impact of COVID-19 on children with autism spectrum disorder in Turkey.

作者信息

Yazıcı Sedat, Oksev Birgül Koçak, Demirarslan Pınar Çelebi, Uğurlu Mahir, Nazık Ayşenur

机构信息

Center for Research and Practice in Special Education, Bartin University, Bartın, Turkey.

Department of Special Education, Bartin University, Bartın, Turkey.

出版信息

Int J Dev Disabil. 2022 Jan 20;69(6):835-844. doi: 10.1080/20473869.2021.2023447. eCollection 2023.

Abstract

The Covid-19 pandemic has shown that people with disabilities are the most vulnerable, neglected and discriminated individuals at times of emergency. National and international studies are needed to understand the extent to which the general well-being, quality of life, and positive and negative behaviors of children with ASD are affected during the pandemic. This study explores the impact of Covid-19 on the typical behaviors of children with Autism Spectrum Disorder (ASD) by focusing on quantitative observation findings obtained from their parents and caregivers. In order to explore the effects of three months of pandemic restrictions during the initial period, 103 parents and caregivers were asked to describe significant behavior changes in their children with ASD comparing before and during the pandemic period. The results showed that children were negatively affected in 21 of 32 typical ASD traits. However, a significant number of participants also reported positive changes in several of their children's social and communicative behaviors as shared family time increased during the pandemic. This finding alone was not statistically supported. However, when it was coupled with the variable of access to online education assistance, it was concluded that the two variables together reduced the negative impact on children. Additionally, we found a sex difference in the impact of Covid-19 on children with ASD. The test results and mean scores show that girls were affected either more negatively or more positively than boys. Our results indicate that the negative effects of a natural disaster such as Covid-19 may be decreased when family members cooperatively share their responsibilities, spend more time with their children with ASD, and use distance education support services. Autism spectrum disorder, Covid-19, pandemic, parents, sex difference, social distancing.

摘要

新冠疫情表明,在紧急情况下,残疾人是最脆弱、最受忽视和歧视的群体。需要开展国内和国际研究,以了解新冠疫情期间自闭症谱系障碍(ASD)儿童的总体幸福感、生活质量以及积极和消极行为受到影响的程度。本研究通过关注从自闭症谱系障碍儿童的父母和照料者那里获得的定量观察结果,探讨了新冠疫情对自闭症谱系障碍儿童典型行为的影响。为了探究疫情初期三个月的限制措施所产生的影响,研究人员邀请了103位父母和照料者描述他们患有自闭症谱系障碍的孩子在疫情前后的显著行为变化。结果显示,在32种典型的自闭症谱系障碍特征中,有21种特征下儿童受到了负面影响。然而,也有相当数量的参与者报告称,由于疫情期间家庭团聚时间增加,他们孩子的一些社交和沟通行为出现了积极变化。仅这一发现并无统计学依据。然而,当结合在线教育援助这一变量时,研究得出结论,这两个变量共同作用减少了对儿童的负面影响。此外,我们还发现新冠疫情对自闭症谱系障碍儿童的影响存在性别差异。测试结果和平均得分表明,女孩受到的影响要么比男孩更消极,要么更积极。我们的研究结果表明,当家庭成员共同分担责任、花更多时间陪伴自闭症谱系障碍儿童并使用远程教育支持服务时,像新冠疫情这样的自然灾害所带来的负面影响可能会降低。自闭症谱系障碍、新冠疫情、大流行、父母、性别差异、社交距离

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