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传统与现代的相互作用:中国北京自闭症儿童家长的压力与应对经历

Interplay between Tradition and Modernity: Stress and Coping Experiences among Parents of Children with Autism in Beijing, China.

作者信息

Wang Xiaoran, Zhai Fuhua, Wang Yixuan

机构信息

Faculty of Humanities and Social Sciences, Beijing University of Technology, Beijing 100124, China.

Beijing Social Governance Research Center, Beijing 100124, China.

出版信息

Behav Sci (Basel). 2023 Oct 2;13(10):814. doi: 10.3390/bs13100814.

Abstract

In traditional Chinese culture, specific beliefs and values can influence parents' experiences of stress and coping while raising children with autism. However, as China undergoes rapid social changes amid globalization, are these cultural influences still significant for today's parents of young children with autism? This study delves into this question through 12 in-depth interviews with parents of children with autism in Beijing. Content analysis indicated that while influences from traditional culture remain, modern parents often diverge from them. They adopt Western views on autism to mitigate stigma, establish boundaries with grandparents to ensure effective early interventions, address imbalanced professional dynamics, adjust authoritarian parenting styles, and broaden their social networks. A mix of traditional and contemporary parenting characterizes their experiences. The discussion elaborates on the findings, emphasizing the importance of family support.

摘要

在中国传统文化中,特定的信仰和价值观会影响父母在抚养自闭症儿童时的压力体验和应对方式。然而,随着中国在全球化进程中经历快速的社会变革,这些文化影响对如今自闭症幼儿的父母来说是否仍然重要呢?本研究通过对北京自闭症儿童家长进行12次深度访谈来探究这个问题。内容分析表明,虽然传统文化的影响依然存在,但现代家长往往与之不同。他们采用西方对自闭症的看法来减轻污名化,与祖父母划清界限以确保有效的早期干预,解决不平衡的专业动态关系,调整专制的育儿方式,并扩大他们的社交网络。传统与现代育儿方式的结合构成了他们的经历特点。讨论部分对研究结果进行了阐述,强调了家庭支持的重要性。

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Addressing Autism Spectrum Disorders in China.应对中国的自闭症谱系障碍
New Dir Child Adolesc Dev. 2019 Jan;2019(163):137-162. doi: 10.1002/cad.20266. Epub 2019 Jan 7.

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