Institute for Mental Health, School of Psychology, University of Birmingham, Birmingham, UK
Institute for Mental Health, School of Psychology, University of Birmingham, Birmingham, UK.
BMJ Open. 2023 Oct 27;13(10):e076885. doi: 10.1136/bmjopen-2023-076885.
In this communication article, we discuss coproduction in suicide prevention research, with an emphasis on involving young people. We critically reflect on the lessons we have learned by working alongside young people, and how these lessons may be useful to other research teams.
The meaningful involvement of young people in the design, implementation and translation of mental health research has received significant attention over the last decade. For most funding bodies, the involvement of patients and the public in the planning and delivery of research is advised and, in many cases, mandatory. When it comes to suicide prevention research, however, things are slightly different in practice. Involvement of young people in suicide prevention research has often been considered a controversial, unfeasible and even risky endeavour. In our experiences of working in this field, such concerns are expressed by funders, Higher Education Health and Safety committees and practitioners. By presenting an example from our research where the involvement of young people as experts by experience was integral, we highlight key lessons learnt that could maximise the potential of youth partnership in suicide prevention research. These lessons take on particular importance in mental health research against the background of long-entrenched power differences and the silencing of service user voices. Professional knowledge, obtained through education and vocational training, has historically taken priority over experiential knowledge obtained through lived experience, in psychiatric practice and research. Although this hierarchy has widely been challenged, any account of coproduction in mental health research is positioned against that background, and the remnants of those inequitable power relationships arguably take on greater resonance in suicide prevention research and require careful consideration to ensure meaningful involvement.
We conclude that progress in suicide research cannot be fulfilled without the meaningful involvement of, and partnership with, young people with lived experience.
在这篇交流文章中,我们讨论了预防自杀研究中的共同生产,重点是让年轻人参与其中。我们批判性地反思了与年轻人合作中所学到的经验教训,以及这些经验教训如何对其他研究团队有用。
在过去的十年中,年轻人在心理健康研究的设计、实施和转化中得到了广泛的关注。对于大多数资助机构来说,建议并在许多情况下强制要求患者和公众参与研究的规划和实施。然而,在预防自杀研究方面,实际情况略有不同。年轻人参与预防自杀研究的情况常常被认为是一项有争议的、不可行的甚至是有风险的努力。在我们在该领域的工作经验中,资金提供者、高等教育健康与安全委员会和从业者都表达了这种担忧。通过展示我们的研究中的一个例子,其中经验丰富的年轻人作为专家的参与是必不可少的,我们强调了可以最大限度地发挥青年在预防自杀研究中的伙伴关系的关键经验教训。在心理健康研究背景下,特别是在长期存在的权力差异和服务使用者声音被压制的情况下,这些经验教训尤为重要。专业知识是通过教育和职业培训获得的,而经验知识是通过生活经验获得的,在精神病学实践和研究中,专业知识历来优先于经验知识。尽管这种等级制度受到了广泛的挑战,但任何关于心理健康研究中的共同生产的描述都是在这种背景下进行的,并且这些不平等权力关系的残余在预防自杀研究中可能具有更大的共鸣,需要仔细考虑以确保有意义的参与。
我们得出结论,没有有生活经验的年轻人的参与和合作,预防自杀研究就不可能取得进展。