Penfornis Alfred, Down Su, Seignez Antoine, Vives Alizé, Bonnemaire Mireille, Kulzer Bernhard
Diabetology Department, Centre Hospitalier Sud Francilien, Corbeil-Essonnes, France and Université Paris-Saclay, Saclay, France.
Somerset NHS Foundation Trust, Somerset, UK.
J Diabetes Sci Technol. 2025 Mar;19(2):407-414. doi: 10.1177/19322968231208690. Epub 2023 Nov 8.
Type 1 diabetes (T1D) is a complex condition requiring constant monitoring and self-management. The landscape of diabetes management is evolving with the development of new technologies. This survey aimed to gain insight into the perceptions and experiences of people with T1D (PWD) and their caregivers on the use of technology in diabetes care, and identify future needs for T1D management.
PWD and caregivers (≥18 years) living in five European countries (France, Germany, Italy, Spain, and the United Kingdom) completed an online survey. Data were collected during July and August 2021.
Responders included 458 PWD and 54 caregivers. More than 60% of PWD perceived devices/digital tools for diabetes management as useful and 63% reported that access to monitoring device data made their life easier. Nearly half of participants hoped for new devices and/or digital tools. While approximately one-third of all PWD had used teleconsultation, perceptions and usage varied significantly between countries and by age (both < .0001), with the lowest use in Germany (20%) and the highest in Spain (48%). The proportions of PWD contributing to diabetes care costs varied by device and were highest for smart insulin pen users at 83% compared with 44% for insulin pen users and 37% for insulin pump users. One-quarter (24%) of PWD and 15% of caregivers felt they lacked knowledge about devices/digital tools for T1D.
Most PWD and caregivers had positive perceptions and experiences of new technologies/digital solutions for diabetes management, although improved support and structured education for devices/digital tools are still required.
1型糖尿病(T1D)是一种复杂的病症,需要持续监测和自我管理。随着新技术的发展,糖尿病管理的格局正在不断演变。本调查旨在深入了解1型糖尿病患者(PWD)及其护理人员对糖尿病护理中技术使用的看法和体验,并确定1型糖尿病管理的未来需求。
居住在五个欧洲国家(法国、德国、意大利、西班牙和英国)的1型糖尿病患者和护理人员(≥18岁)完成了一项在线调查。数据于2021年7月和8月收集。
受访者包括458名1型糖尿病患者和54名护理人员。超过60%的1型糖尿病患者认为糖尿病管理的设备/数字工具有用,63%的患者报告说能够获取监测设备数据使他们的生活更轻松。近一半的参与者希望有新的设备和/或数字工具。虽然所有1型糖尿病患者中约有三分之一使用过远程会诊,但不同国家和年龄段的看法和使用情况差异显著(两者均<0.0001),德国的使用率最低(20%),西班牙的使用率最高(48%)。1型糖尿病患者承担糖尿病护理费用的比例因设备而异,使用智能胰岛素笔的患者比例最高,为83%,而使用胰岛素笔的患者为44%,使用胰岛素泵的患者为37%。四分之一(24%)的1型糖尿病患者和15%的护理人员觉得他们缺乏关于1型糖尿病设备/数字工具的知识。
大多数1型糖尿病患者和护理人员对糖尿病管理的新技术/数字解决方案有积极的看法和体验,尽管仍需要改善对设备/数字工具的支持和系统化教育。