Kaunas University of Technology, School of Economics and Business, Kaunas, Lithuania.
Mykolas Romeris University, Institute of Communication, Vilnius, Lithuania.
Int J Health Plann Manage. 2024 Mar;39(2):397-416. doi: 10.1002/hpm.3733. Epub 2023 Nov 9.
Patient-led online health communities (OHCs) provide an accessible way for patients to share their knowledge without the constraints of time and distance. By sharing knowledge, patients receive information from other members of the community that expands their knowledge. In this way, knowledge 'grows' and enhances the ability of patients in the community to adequately self-care in everyday life, that is, patient empowerment. This paper aims to understand the dynamics of knowledge sharing in patient-led OHCs. In search of an answer to the research question, the virtual ethnography research design was applied using an observational data collection method. The observational research was conducted in five patient-led OHCs of chronically ill patients on the Lithuanian version of the Facebook Platform. The results of the study provided insight into the dynamics of knowledge sharing by detailing the design of the discussions that took place in the studied communities and by characterising the path of knowledge sharing.
患者主导的在线健康社区 (OHC) 为患者提供了一种不受时间和空间限制的知识共享方式。通过分享知识,患者从社区的其他成员那里获得信息,从而扩展了他们的知识。通过这种方式,知识“增长”,并增强了社区中患者在日常生活中充分自我护理的能力,即患者赋权。本文旨在了解患者主导的 OHC 中的知识共享动态。为了回答研究问题,应用了虚拟民族志研究设计,并采用观察性数据收集方法。观察性研究在立陶宛版 Facebook 平台上的五个慢性病患者主导的 OHC 中进行。通过详细描述在研究社区中进行的讨论的设计,并通过描述知识共享的路径,该研究的结果深入了解了知识共享的动态。