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前瞻性研究在线健康社区:为慢性病患者赋能知识的视角。

Foresight study on online health community: The perspective of knowledge empowerment for patients with chronic diseases.

机构信息

School of Economics and Business, Kaunas University of Technology, Kaunas, Lithuania.

出版信息

Int J Health Plann Manage. 2022 Jul;37(4):2354-2375. doi: 10.1002/hpm.3477. Epub 2022 May 7.

Abstract

Patient empowerment is an indispensable precondition for patients to self-manage their disease. The article takes the position that patients are empowered for disease self-management through patient knowledge empowerment when sharing knowledge. One of the most important instruments to successfully empower a patient to manage a chronic disease and maintain social relations, which are also a precondition for the prevention of chronic illnesses, is the possibility to access online health communities (OHCs) and participate in them. The aim of the article is to model possible development scenarios of OHCs as enablers of patient knowledge in relation to other digital health technologies (DHTs). A foresight methodology was used to achieve the goal, employing a technology scanning approach after selecting 10 foresight studies, which resulted in four future scenario models for the empowerment of patients wcith chronic diseases through digital health communities. They reveal options for the future interoperability of OHCs with other DHTs and highlight their importance and significance for the healthcare system as a technology for balancing patient self-efficacy and social relations as well as the need to maintain and develop them.

摘要

患者赋权是患者自我管理疾病的不可或缺的前提条件。本文认为,通过知识共享使患者获得知识赋权,从而为疾病自我管理赋能。对于成功赋能患者管理慢性病和维持社会关系(这也是预防慢性病的前提条件)来说,其中一个最重要的工具是访问在线健康社区(OHC)并参与其中的可能性。本文的目的是将 OHC 作为与其他数字健康技术(DHT)相关的患者知识的推动者,为其建立可能的发展情景模型。采用了前瞻性方法来实现这一目标,在选择了 10 项前瞻性研究后,采用技术扫描方法,为通过数字健康社区为慢性病患者赋权建立了四个未来情景模型。这些模型揭示了 OHC 与其他 DHT 未来互操作性的选择,并强调了它们对于医疗保健系统的重要性和意义,作为平衡患者自我效能和社会关系的技术,以及维持和发展这些关系的必要性。

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