Department of Life, Health and Environmental Sciences, University of L'Aquila, 67100 L'Aquila, Italy.
Department of Dynamic, Clinical Psychology and Health Sciences, Sapienza University of Rome, 00185 Rome, Italy.
Int J Environ Res Public Health. 2023 Oct 26;20(21):6978. doi: 10.3390/ijerph20216978.
(1) Background: endometriosis is included in the list of chronic and disabling pathologies. This study aimed to examine patients' points of view about the quality of care for endometriosis during the COVID-19 pandemic; (2) Methods: we conducted a survey on knowledge about endometriosis, management of endometriosis, perceived mental and physical well-being, and perceived changes in the quality of care during the pandemic; (3) Results: out of 1065 participants, 875 were included in the analysis, with an average age of 34. Overall, patients had positive perceptions of care accessibility and cleanliness (95%), but less satisfaction with visit hours (86%). Those with better physical and psychological health were more satisfied with service hours, while those treated at specialised centres were more content with cleanliness. Satisfaction with clarity was linked to specialist treatment, and perceived availability to listen correlated with age, complications, and overall health status; (4) Conclusions: patients' perspectives are crucial for patient education and advocate for specialised interdisciplinary networks to support endometriosis management and patients' well-being. These findings highlight the importance of considering patient viewpoints, particularly in the context of the COVID-19 pandemic's impact on healthcare systems and suggest a need for further research from the patient's perspective.
(1) 背景:子宫内膜异位症被列入慢性和致残性疾病之列。本研究旨在调查患者在 COVID-19 大流行期间对子宫内膜异位症护理质量的看法;(2) 方法:我们就子宫内膜异位症知识、子宫内膜异位症管理、感知心理健康和身体健康以及大流行期间护理质量变化进行了调查;(3) 结果:在 1065 名参与者中,有 875 名被纳入分析,平均年龄为 34 岁。总体而言,患者对护理的可及性和清洁度(95%)有积极的看法,但对就诊时间(86%)的满意度较低。那些身体和心理健康状况较好的人对服务时间更满意,而那些在专门中心接受治疗的人对清洁度更满意。对清晰度的满意度与专科治疗有关,而感知的可倾听性与年龄、并发症和整体健康状况有关;(4) 结论:患者的观点对于患者教育和倡导专门的跨学科网络以支持子宫内膜异位症管理和患者的健康福祉至关重要。这些发现强调了考虑患者观点的重要性,特别是在 COVID-19 大流行对医疗保健系统的影响背景下,并建议从患者的角度进一步研究。