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一项关于成年人癫痫患者身体活动障碍、行为和偏好的单中心调查。

A single-center survey on physical activity barriers, behaviors and preferences in adults with epilepsy.

机构信息

Wake Forest University School of Medicine, Department of Neurology, Winston-Salem, NC, USA.

Wake Forest University School of Medicine, Department of Neurology, Winston-Salem, NC, USA.

出版信息

Epilepsy Behav. 2023 Dec;149:109491. doi: 10.1016/j.yebeh.2023.109491. Epub 2023 Nov 9.

Abstract

BACKGROUND

Improved understanding of physical activity barriersand preferences in people with epilepsyis needed to successfully design and perform larger, more robust effectivenesstrials.

METHODS

Adult patients at a single tertiary epilepsy center between January and April 2020 were surveyed. The survey included a validated physical activity questionnaire (Physical Activity Scale for the Elderly) plus 15 items aimed to address 1) perceptions and beliefs regarding physical activity, 2) barriers to routine physical activity, and 3) willingness and ability to participate in a physical activity intervention and 4) current physical abilities, activities, and preferences.

RESULTS

95 participants with epilepsy (age 42 ± 16.2, 59 % female) completed the survey. Sixty-five participants (68.4 %) reported that they believe that physical activity could improve their seizure frequency. However, 40 % of those surveyed said their neurologist had never talked to them about physical activity. The most commonly reported barriers to physical activity were lack of time (24.7 %) and fear of having a seizure (19.7 %), while barriers to intervention participation included being unable to come to in-person sessions (53 % of those willing to participate),living far away (39.3 %), time constraints (28.6 %), and lack of transportation (21.4 %).

CONCLUSION

Future physical activity studies in people with epilepsy should focus on using tailored interventions that accommodate their unique beliefs and barriers.

摘要

背景

为了成功设计和开展更大规模、更具影响力的有效性试验,需要深入了解癫痫患者的身体活动障碍和偏好。

方法

2020 年 1 月至 4 月期间,对单家三级癫痫中心的成年患者进行了调查。该调查包括经过验证的身体活动问卷(老年人身体活动量表)和 15 个项目,旨在解决以下问题:1)对身体活动的认知和信念;2)日常身体活动的障碍;3)参与身体活动干预的意愿和能力;4)当前的身体能力、活动和偏好。

结果

95 名癫痫患者(年龄 42 ± 16.2 岁,59%为女性)完成了调查。65 名患者(68.4%)表示他们相信身体活动可以改善他们的癫痫发作频率。然而,40%的受访者表示,他们的神经科医生从未与他们讨论过身体活动。身体活动的最常见障碍是缺乏时间(24.7%)和害怕癫痫发作(19.7%),而干预参与的障碍包括无法参加面授课程(53%愿意参加的人)、住得远(39.3%)、时间限制(28.6%)和缺乏交通工具(21.4%)。

结论

未来的癫痫患者身体活动研究应侧重于使用量身定制的干预措施,以适应他们独特的信念和障碍。

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