Mulyana Aep Maulid, Rakhmawati Windy, Wartakusumah Riki, Fitri Siti Yuyun Rahayu, Juniarti Neti
Nursing Internship Program, Faculty of Nursing, Universitas Padjadjaran, Sumedang, West Java, 45363, Indonesia.
Department of Pediatric Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, West Java, 45363, Indonesia.
J Multidiscip Healthc. 2023 Nov 9;16:3415-3433. doi: 10.2147/JMDH.S440082. eCollection 2023.
The incidence of chronic diseases in children is increasing worldwide, which can disrupt the quality of life. Family empowerment (FE) is one approach to strengthen family care among children with chronic diseases. In addition, internet has the potential in healthcare service interventions for families.
This study aimed to determine the efficacy of internet-based family empowerment interventions among children with chronic diseases.
The study used a mixed-methods systematic review. A literature review was conducted following PRISMA guidelines using the PubMed, Scopus, ScienceDirect, and CINAHL databases. We used the PCC framework: chronic diseases (Population), family empowerment (Concept), and internet-based intervention (Context). Studies were eligible if published between 2013 and 2023, full-text, original study design, and focused on family empowerment in children with chronic diseases. Studies would be excluded if they were not in English or if the population was adults. The quality of the studies was assessed using the Mixed Methods Appraisal Tool (MMAT) version 2018. The study analysis used Sequential Explanatory Synthesis, which is a quantitative study (QUAN) synthesis followed by a qualitative study (QUAL) synthesis, then integrated using the QUAL data transformation technique.
We highlight the quantitative study findings that an internet-based family empowerment intervention positively impacted family members' ability to care for children with chronic diseases with a mean Family Empowerment Scale (FES) total score of 4.13. We analyzed six study and identified four themes regarding efficacy of internet-based interventions in empowering families with children with chronic diseases: knowledge; availability of resources and time-saving; connectedness and communication; and family management and self-confidence.
Our study highlights that online-based interventions in family empowerment positively impact enhancing all domains of empowerment. This findings suggest that internet-based family interventions need to be adopted to fulfill the care needs of children with chronic diseases sustainably.
全球儿童慢性病的发病率正在上升,这可能会影响生活质量。家庭赋权是加强慢性病患儿家庭护理的一种方法。此外,互联网在针对家庭的医疗服务干预方面具有潜力。
本研究旨在确定基于互联网的家庭赋权干预对慢性病患儿的疗效。
本研究采用混合方法系统评价。按照PRISMA指南,使用PubMed、Scopus、ScienceDirect和CINAHL数据库进行文献综述。我们使用了PCC框架:慢性病(人群)、家庭赋权(概念)和基于互联网的干预(背景)。如果研究发表于2013年至2023年之间、为全文、采用原始研究设计且聚焦于慢性病患儿的家庭赋权,则符合纳入标准。如果研究不是英文的或研究对象为成年人,则将被排除。使用2018版混合方法评估工具(MMAT)评估研究质量。研究分析采用序列解释性综合法,即先进行定量研究(QUAN)综合,再进行定性研究(QUAL)综合,然后使用QUAL数据转换技术进行整合。
我们强调定量研究结果,即基于互联网的家庭赋权干预对家庭成员照顾慢性病患儿的能力产生了积极影响,家庭赋权量表(FES)总平均分4.13。我们分析了六项研究,并确定了关于基于互联网的干预在增强慢性病患儿家庭权能方面疗效的四个主题:知识;资源可用性和节省时间;联系与沟通;以及家庭管理和自信心。
我们的研究强调,基于网络的家庭赋权干预对增强赋权的所有领域具有积极影响。这一结果表明,需要采用基于互联网的家庭干预措施,以可持续地满足慢性病患儿的护理需求。