Kanniappan Vadivelan, Abishek J R
Professor, SRM College of Physiotherapy, SRM Institute of Science and Technology, Kattankulathur, Chengalpattu, Tamil Nadu, India.
PhD Scholar, SRM College of Physiotherapy, SRM Institute of Science and Technology, Kattankulathur, Chengalpattu, Tamil Nadu, India.
Indian J Community Med. 2023 Sep-Oct;48(5):762-770. doi: 10.4103/ijcm.ijcm_172_23. Epub 2023 Sep 7.
Schizophrenia affects various spheres of life causing so many difficulties and burden, but the studies focusing on the experience of individuals living with schizophrenia with reference to the Tamil Nadu context are sparse.
A qualitative interview based on a hermeneutic phenomenological approach was conducted with 10 individuals living with Schizophrenia and was recorded. The responses were transcribed and coded. Based on codes, domains and subdomains were identified.
Six themes were identified, under which the participant's burden was described. Participants expressed a deep longing for love and care. They were deprived of family's affection. Participants felt economically insecured, which was owing to their unemployment. Participants had many physical complaints including sleep disturbance and fatigue. Participants expressed that they had failing memory, concentration issues, and difficulty in planning. Most of the participants felt isolated by family and kin. They did not participate in much social activities due to the fear of judgment and stigmatization.
The experience of individuals living with Schizophrenia revealed that they experienced a series of burdens owing to their illness and its impacts that were categorized into various themes including physical, vocational, cognitive, psychological, personal, and social factors.
精神分裂症会影响生活的各个方面,带来诸多困难和负担,但针对泰米尔纳德邦背景下精神分裂症患者经历的研究却很稀少。
采用诠释现象学方法对10名精神分裂症患者进行了定性访谈并录音。对访谈内容进行转录和编码。基于编码确定了领域和子领域。
确定了六个主题,用以描述参与者的负担。参与者表达了对爱和关怀的深切渴望。他们被剥夺了家人的关爱。参与者因失业而感到经济上缺乏保障。参与者有许多身体不适,包括睡眠障碍和疲劳。参与者表示自己记忆力减退、注意力不集中且难以制定计划。大多数参与者感到被家人和亲属孤立。由于害怕被评判和污名化,他们很少参与社交活动。
精神分裂症患者的经历表明,由于疾病及其影响,他们经历了一系列负担,这些负担可分为身体、职业、认知、心理、个人和社会等多个主题。