Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.
Department of Experimental Psychology, University of Oxford, Oxford, UK.
Br J Dev Psychol. 2024 Jun;42(2):117-132. doi: 10.1111/bjdp.12469. Epub 2023 Nov 16.
Family history (FH) of autism and ADHD is not often considered during the recruitment process of developmental studies, despite high recurrence rates. We looked at the rate of autism or ADHD amongst family members of young children (9 to 46 months) in three UK-based samples (N = 1055) recruited using different methods. The rate of FH-autism or FH-ADHD was 3%-9% for diagnosed cases. The rate was highest in the sample recruited through an online participant pool, which also consisted of the most socio-economically diverse families. Lower parental education and family income were associated with higher rates of FH-ADHD and lower parental education with increased FH-autism. Thus, recruitment strategies have a meaningful impact on neurodiversity and the conclusions and generalizations that can be drawn. Specifically, recruitment using crowdsourcing websites could create a sample that is more representative of the wider population, compared to those recruited through university-related volunteer databases and social media.
自闭症和注意缺陷多动障碍(ADHD)的家族史在发展研究的招募过程中通常不被考虑,尽管其复发率很高。我们研究了三个基于英国的样本(共招募了 1055 名 9 至 46 个月大的儿童)中家庭成员的自闭症或 ADHD 发病率(N=1055),这些样本是通过不同的方法招募的。确诊病例的家族自闭症或 ADHD 发病率为 3%-9%。通过在线参与者库招募的样本发病率最高,该样本还包括最多元化的社会经济家庭。父母受教育程度和家庭收入较低与 ADHD 家族史发病率较高相关,而父母受教育程度较低与自闭症家族史发病率较高相关。因此,招募策略对神经多样性以及可以得出的结论和推论有重要影响。具体来说,与通过大学相关志愿者数据库和社交媒体招募相比,使用众包网站进行招募可能会创建一个更能代表更广泛人群的样本。