School of Nursing and Midwifery, College of Health, Medicine and Wellbeing, The University of Newcastle, University Drive, Callaghan, New South Wales, Australia.
President Office, Tung Wah College, Hong Kong, SAR, People's Republic of China.
J Adv Nurs. 2024 May;80(5):1967-1983. doi: 10.1111/jan.15948. Epub 2023 Nov 17.
To obtain an in-depth understanding of women's decision-making experiences related to mastectomy.
A descriptive qualitative interview study.
Individual semi-structured interviews were conducted face-to-face with 27 Chinese women with breast cancer who underwent mastectomy at two tertiary hospitals in mainland China between September 2020 and December 2021 after obtaining the appropriate ethical approvals. Interviews were conducted in Mandarin. Data were analysed using inductive content analysis.
Mean age of participants was 48 years (range 31-70). Most participants had low education, low monthly family income, had a partner and health insurance, had been diagnosed with early breast cancer, and had not undergone reconstructive surgery. Six categories related to decision-making experiences emerged: (1) Emotions affecting decision-making, (2) Information seeking for decision-making, (3) Beliefs about mastectomy and the breast, (4) Participation in decision-making, (5) People who influence decision-making, and (6) Post-decision reflection. Participants did not mention the role of nurses in their decision-making process for mastectomy.
This study adds valuable insights into the limited evidence on women's experience with decision-making about mastectomy from a Chinese perspective, which is important given the continuing high prevalence of mastectomy in many regions. Future studies from other countries and ethnic groups are recommended to gain diverse knowledge.
The findings of this study are useful for nurses and other healthcare professionals in the multidisciplinary team to better support women with breast cancer in their decision-making process regarding mastectomy. The findings could inform future interventions to support treatment decision-making and may be relevant to women living in similar socio-medical contexts to those in mainland China.
The study was reported following the Standards for Reporting Qualitative Research checklist.
No patient or public contribution.
深入了解女性在接受乳腺癌乳房切除术方面的决策体验。
描述性定性访谈研究。
在中国内地两家三级医院接受乳房切除术的 27 名乳腺癌女性，于 2020 年 9 月至 2021 年 12 月期间获得适当的伦理批准后，通过面谈进行了个人半结构式访谈。访谈使用普通话进行。使用归纳内容分析法分析数据。
参与者的平均年龄为 48 岁（范围 31-70 岁）。大多数参与者受教育程度低、家庭月收入低、有伴侣和医疗保险、诊断为早期乳腺癌且未接受重建手术。出现了与决策体验相关的六个类别：（1）影响决策的情绪；（2）决策信息搜索；（3）对乳房切除术和乳房的信念；（4）参与决策；（5）影响决策的人；（6）决策后反思。参与者在乳房切除术决策过程中未提及护士的作用。
本研究从中国视角对女性乳房切除术决策体验的有限证据进行了补充，鉴于许多地区乳房切除术仍持续高发，这一点非常重要。建议来自其他国家和族裔群体的未来研究以获得更多的知识。
本研究结果对多学科团队中的护士和其他医护人员在支持乳腺癌女性进行乳房切除术决策方面非常有用。研究结果可以为支持治疗决策的未来干预措施提供信息，并且可能与中国内地类似社会医疗背景下的女性相关。
本研究遵循定性研究报告标准清单进行报告。
无患者或公众参与。
