Ghisi Gabriela Lima de Melo, Hebert Andree-Anne, Oh Paul, Colella Tracey, Aultman Crystal, Carvalho Carolina, Nijhawan Rajni, Ross Marie-Kristelle, Grace Sherry L
KITE - Toronto Rehabilitation Institute, University Health Network, University of Toronto, Canada; Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Canada.
Programme de Prévention Secondaire et Réadaptation Cardiovasculaire, Levis, Canada.
Heart Lung. 2024 Mar-Apr;64:14-23. doi: 10.1016/j.hrtlng.2023.11.004. Epub 2023 Nov 18.
Despite their differential risk factor burden, context and often different forms of heart disease, cardiac rehabilitation (CR) programs generally do not provide women with needed secondary prevention information specific to them.
to co-design evidence-informed, theory-based comprehensive women-focused education, building from Health e-University's Cardiac College for CR.
A multi-disciplinary, multi-stakeholder steering committee (N = 18) oversaw the four-phase development of the women-focused curriculum. Phase 1 involved a literature review on women's CR information needs and preferences, phase 2 a CR program needs assessment, phase 3 content development (including determining content and mode, assigning experts to create the content, plain language review and translation), and phase 4 will comprise evaluation and implementation. In phase 2, a focus group was conducted with Canadian CR providers; it was analyzed using Braun and Clarke's iterative approach.
Nineteen providers participated in the focus group, with four themes emerging: current status of education, challenges to delivering women-focused education, delivery modes and topical resources. Results were consistent with those from our related global survey, supporting saturation of themes. Co-designed educational materials included 19 videos. These were organized across 5 webpages in English and French, specific to tests and treatments, exercise, diet, psychosocial well-being, and self-management. Twelve corresponding session slide decks with notes for clinicians were created, to support program delivery in CR flexibly.
While further evaluation is underway, these open-access CR education resources will be disseminated for implementation, to support women in reducing their risk of cardiovascular sequelae.
尽管女性和男性在心脏病风险因素负担、患病背景以及心脏病形式上存在差异，但心脏康复（CR）项目通常并未为女性提供她们所需的针对性二级预防信息。
基于健康电子大学的心脏康复学院，共同设计以女性为重点、基于证据且有理论依据的综合教育内容。
一个多学科、多利益相关方的指导委员会（N = 18）监督了以女性为重点的课程的四个阶段开发。第一阶段对女性心脏康复信息需求和偏好进行文献综述，第二阶段进行心脏康复项目需求评估，第三阶段进行内容开发（包括确定内容和模式、指派专家创建内容、进行通俗易懂语言的审核和翻译），第四阶段将包括评估和实施。在第二阶段，对加拿大心脏康复服务提供者进行了焦点小组访谈；采用布劳恩和克拉克的迭代方法进行分析。
19名服务提供者参与了焦点小组访谈，出现了四个主题：教育现状、提供针对女性的教育所面临的挑战、授课模式和主题资源。结果与我们相关的全球调查结果一致，支持了主题的饱和度。共同设计的教育材料包括19个视频。这些视频以英语和法语在5个网页上进行了整理，分别针对检查和治疗、运动、饮食、心理社会福祉和自我管理。还创建了12个相应的带有临床医生注释的课程幻灯片文档，以灵活支持心脏康复项目的实施。
虽然进一步评估正在进行中，但这些开放获取的心脏康复教育资源将进行传播以供实施，以帮助女性降低心血管后遗症的风险。
