Department of Neurology, Massachusetts General Hospital, Center for Neurotechnology and Neurorecovery, 101 Merrimac Street, Suite 310, Boston, MA 02114, USA.
Phys Med Rehabil Clin N Am. 2024 Feb;35(1):209-221. doi: 10.1016/j.pmr.2023.06.016. Epub 2023 Jul 24.
Patients with disorders of consciousness who survive to discharge following severe acute brain injury may face profoundly complex medical, ethical, and psychosocial challenges during their courses of recovery and rehabilitation. Although issues encountered in caring for such patients during acute hospitalization have received substantial attention, ethical challenges that may arise in subacute and chronic phases have been underexplored. Shedding light on these issues, this article explores the landscape of normative issues in the course of treating and facilitating access to care for persons with disorders of consciousness during rehabilitation and examines potential implications for patients, clinicians, family members, and society.
意识障碍患者在严重急性脑损伤后存活并出院，在康复过程中可能会面临极其复杂的医疗、伦理和心理社会挑战。尽管在急性住院期间照顾此类患者时遇到的问题已经受到了广泛关注，但亚急性和慢性阶段可能出现的伦理挑战尚未得到充分探索。本文旨在探讨意识障碍患者在康复过程中治疗和提供护理的规范性问题，并探讨这些问题对患者、临床医生、家庭成员和社会的潜在影响，以此阐明这些问题。
