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Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome: a comprehensive update. Mayer-Rokitansky-Küster-Hauser(MRKH)综合征:全面更新。
Orphanet J Rare Dis. 2020 Aug 20;15(1):214. doi: 10.1186/s13023-020-01491-9.
2
Sexual functioning, sexual esteem, genital self-image and psychological and relational functioning in women with Mayer-Rokitansky-Küster-Hauser syndrome: a case-control study.患有 Mayer-Rokitansky-Küster-Hauser 综合征的女性的性功能、性自尊、生殖器自我形象以及心理和关系功能:病例对照研究。
Hum Reprod. 2019 Sep 29;34(9):1661-1673. doi: 10.1093/humrep/dez130.
3
ACOG Committee Opinion No. 728: Müllerian Agenesis: Diagnosis, Management, And Treatment.美国妇产科医师学会委员会意见第728号:苗勒管发育不全:诊断、管理与治疗
Obstet Gynecol. 2018 Jan;131(1):e35-e42. doi: 10.1097/AOG.0000000000002458.
4
Personality traits and coping styles in women with Mayer-Rokitansky-Küster-Hauser syndrome.患有迈耶-罗基坦斯基-库斯特-豪泽综合征女性的人格特质与应对方式
Arch Med Sci. 2015 Dec 10;11(6):1244-9. doi: 10.5114/aoms.2015.56350. Epub 2015 Dec 11.
5
Sexual activity of women with Mayer-Rokitansky-Küster-Hauser syndrome (MRKHS)--preliminary study.迈耶-罗基坦斯基-库斯特-豪泽综合征(MRKHS)女性的性活动——初步研究。
Ginekol Pol. 2015 Sep;86(9):648-52. doi: 10.17772/gp/57853.
6
Sexual and Psychosocial Functioning in Women with MRKHS after Neovaginoplasty According to Wharton-Sheares-George: A Case Control Study.根据沃顿-希尔斯-乔治法进行新阴道成形术后MRKHS女性的性功能和心理社会功能:一项病例对照研究
PLoS One. 2015 Apr 22;10(4):e0124604. doi: 10.1371/journal.pone.0124604. eCollection 2015.
7
On the factor structure of the Rosenberg (1965) General Self-Esteem Scale.论罗森伯格(1965年)一般自尊量表的因素结构。
Psychol Assess. 2015 Jun;27(2):621-35. doi: 10.1037/pas0000073. Epub 2015 Jan 12.
8
[Sexuality of a woman with Mayer-Rokitansky-Küster-Hauser syndrome--case report].[一名患有迈耶-罗基坦斯基-库斯特-豪泽综合征女性的性征——病例报告]
Ginekol Pol. 2013 Sep;84(9):811-4. doi: 10.17772/gp/1645.
9
Sexual life and sexual wellness in individuals with complete androgen insensitivity syndrome (CAIS) and Mayer-Rokitansky-Küster-Hauser Syndrome (MRKHS).完全雄激素不敏感综合征(CAIS)和 Mayer-Rokitansky-Küster-Hauser 综合征(MRKHS)患者的性生活和性健康。
J Sex Med. 2014 Mar;11(3):729-42. doi: 10.1111/jsm.12321. Epub 2013 Oct 25.
10
Anatomic and sexual outcomes after vaginoplasty using tissue-engineered biomaterial graft in patients with Mayer-Rokitansky-Küster-Hauser syndrome: a new minimally invasive and effective surgery.Mayer-Rokitansky-Küster-Hauser 综合征患者采用组织工程生物材料移植物行阴道成形术后的解剖学和性结果:一种新的微创有效手术。
J Sex Med. 2013 Jun;10(6):1652-8. doi: 10.1111/jsm.12143. Epub 2013 Mar 19.

患有迈耶-罗基坦斯基-库斯特-豪泽综合征的年轻女性性自尊的心理相关因素。

Psychological correlates of sexual self-esteem in young women with Mayer-Rokitansky-Küster-Hauser syndrome.

作者信息

Beisert Maria J, Chodecka Aleksandra M, Walczyk-Matyja Katarzyna, Szymańska-Pytlińska Marta E, Kędzia Witold, Kapczuk Karina

机构信息

Faculty of Psychology and Cognitive Science, Adam Mickiewicz University, Poznan, Poland.

Division of Gynecology, Department of Perinatology and Gynecology, Poznan University of Medical Sciences, Poznan, Poland.

出版信息

Curr Issues Personal Psychol. 2022 Mar 25;10(4):333-342. doi: 10.5114/cipp.2022.114044. eCollection 2022.

DOI:10.5114/cipp.2022.114044
PMID:38013735
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10535637/
Abstract

BACKGROUND

Mayer-Rokitansky-Küster-Hauser syndrome (MRKHS) is a difference (disorder) of sex development that results from Müllerian duct aplasia in 46,XX females. The diagnosis of MRKHS is usually established in late adolescence. The purpose of the study was to assess the impact of congenital absence of uterus and vagina (CAUV) on a patient's psychosexual functioning.

PARTICIPANTS AND PROCEDURE

Thirty-two women with MRKHS (mean age 22.9 years) and 32 matched healthy controls (mean age 24.75 years) completed three study questionnaires: the Sexual Self-Esteem Inventory for Women, the Rosenberg Self-Esteem Scale, and Minnesota Multiphasic Personality Inventory-2 (MMPI-2). Statistical analysis was performed by IBM SPSS Statistics 22.

RESULTS

There was no difference in global self-esteem between the two study groups. MRKHS females had lower sexual self-esteem and experienced higher intensity of some psychological functioning characteristics (paranoia, psychasthenia, schizophrenia) than their peers. Correlations between sexual self-esteem and results on depression, psychopathic deviate, schizophrenia, social introversion and anxiety scales were observed in patients with MRKHS. Global self-esteem and schizophrenia results were significant predictors of sexual self-esteem in the clinical group. Higher global self-esteem and lower results in the schizophrenia scale were associated with higher sexual self-esteem in patients with MRKHS.

CONCLUSIONS

Psychological and medical counseling of women with MRKHS should address their impaired sexual self-esteem, especially sexual skills and experiences. While the number of diagnostic responses indicating the presence of specific symptoms in MRKHS females is statistically significantly different, the level of scores obtained does not exceed the threshold of clinical pathology.

摘要

背景

迈耶-罗基坦斯基-库斯特-豪泽综合征(MRKHS)是一种性发育差异(障碍),由46,XX女性的苗勒管发育不全引起。MRKHS的诊断通常在青春期后期确立。本研究的目的是评估先天性子宫和阴道缺失(CAUV)对患者心理性功能的影响。

参与者与程序

32名患有MRKHS的女性(平均年龄22.9岁)和32名匹配的健康对照者(平均年龄24.75岁)完成了三份研究问卷:女性性自尊量表、罗森伯格自尊量表和明尼苏达多相人格调查表-2(MMPI-2)。使用IBM SPSS Statistics 22进行统计分析。

结果

两个研究组的总体自尊没有差异。与同龄人相比,患有MRKHS的女性性自尊较低,且某些心理功能特征(偏执、精神衰弱、精神分裂症)的强度较高。在患有MRKHS的患者中,观察到性自尊与抑郁、精神病态偏差、精神分裂症、社会内向和焦虑量表结果之间的相关性。总体自尊和精神分裂症结果是临床组性自尊的重要预测因素。在患有MRKHS的患者中,较高的总体自尊和较低的精神分裂症量表得分与较高的性自尊相关。

结论

对患有MRKHS的女性进行心理和医学咨询时,应关注其受损的性自尊,尤其是性技巧和性体验。虽然表明MRKHS女性存在特定症状的诊断反应数量在统计学上有显著差异,但获得的分数水平未超过临床病理学阈值。