迟发性运动障碍对患者和照护者的影响：对美国照护者的调查。
Impact of tardive dyskinesia on patients and caregivers: a survey of caregivers in the United States.
机构信息
Texas Tech University School of Medicine-Permian Basin, Midland, TX, USA.
Analysis Group, Inc., Boston, MA, USA.
出版信息
J Patient Rep Outcomes. 2023 Nov 28;7(1):122. doi: 10.1186/s41687-023-00658-9.
BACKGROUND
Tardive dyskinesia (TD) has a multidimensional impact on patients with TD and, as importantly, their caregivers. An online survey was developed and administered to assess patient and caregiver burden of TD. Survey participants were unpaid caregivers for patients with diagnoses of TD and schizophrenia, bipolar disorder, and/or major depressive disorder. Overall, 162 caregivers rated the 7-day impact of TD on the physical, psychological, and social functioning of patients and the impact of TD on these domains in their own lives and in their professional lives.
RESULTS
Across physical, psychological, and social domains, most caregivers (82.7%) reported that TD had severe impact on the cared-for patients, and 23.5% reported severe impact of TD in their own lives. Caregivers experienced 46.4% activity impairment, and caregivers who were employed (n = 136) experienced 49.5% overall work impairment because of TD-related caregiving.
CONCLUSIONS
These results suggest that TD imposes substantial burden for both caregivers and patients.
背景
迟发性运动障碍 (TD) 对 TD 患者及其护理人员有多重影响。我们开发并实施了一项在线调查，以评估 TD 患者和护理人员的负担。调查参与者是 TD 患者的无薪护理人员，这些患者的诊断为 TD 以及精神分裂症、双相情感障碍和/或重度抑郁症。总体而言，162 名护理人员对 TD 在患者身体、心理和社会功能方面的 7 天影响以及 TD 在其自身生活和职业生活中的影响进行了评分。
结果
在身体、心理和社会领域，大多数护理人员（82.7%）报告 TD 对所照顾的患者有严重影响，23.5%的护理人员报告 TD 对其自身生活有严重影响。护理人员经历了 46.4%的活动障碍，其中有 136 名受雇的护理人员因与 TD 相关的护理而经历了 49.5%的整体工作障碍。
结论
这些结果表明 TD 给护理人员和患者都带来了巨大的负担。
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