Spina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA.
ReachAnother Foundation, Bend, OR, USA; Addis Ababa, Ethiopia; and Delft, The Netherlands.
J Pediatr Rehabil Med. 2023;16(4):657-663. doi: 10.3233/PRM-230037.
This project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health trainees.
Using a descriptive study design, a convenience sample of SB curricula were identified in 2022-23 by members of the Spina Bifida World Congress Outreach Committee and evaluated during a series of monthly Zoom calls to discuss SB education in a global health context. Participants included (1) leadership from the ReachAnother Foundation, (2) invited panelists from the Spina Bifida World Congress Global Health Symposium, and (3) global health students and preceptors. Education initiatives in Ethiopia, Sweden, Argentina, Ecuador, and the United States were evaluated vis-à-vis format and content.
All of the education initiatives referenced the framework of the World Health Organization International Classification of Functioning, Disability and Health. Formats varied and included both virtual and interactive workshops, print materials, videos, and guides for small group discussion. Content addressed four domains: Folate Prevention, Neurosurgical Training, After Care, and Data Collection. A multidisciplinary approach, partnerships with families, and workforce pipeline training were identified as guiding themes for educating the next generation of SB researchers and clinicians in global health settings.
The Spina Bifida Global Learning Collaborative is a transnational group of advocates, clinicians, and investigators whose mission is the advancement of SB-related global health education. Lessons learned from the collaborative are being leveraged to develop a global health curriculum for learners, which may improve services for individuals with SB around the globe.
本项目旨在发起一个国际学习社区，以指导制定全球健康受训人员的脊髓脊膜膨出（SB）课程。
采用描述性研究设计，2022-2023 年，由脊髓脊膜膨出世界大会外联委员会成员确定了 SB 课程的便利样本，并通过一系列每月一次的 Zoom 电话会议进行评估，以讨论全球健康背景下的 SB 教育。参与者包括：（1）ReachAnother 基金会的领导层；（2）来自脊髓脊膜膨出世界大会全球健康研讨会的特邀小组成员；（3）全球健康学生和导师。对埃塞俄比亚、瑞典、阿根廷、厄瓜多尔和美国的教育计划进行了评估，评估内容涉及格式和内容。
所有教育计划均参考世界卫生组织《国际功能、残疾和健康分类》框架。格式各不相同，包括虚拟和互动讲习班、印刷材料、视频以及小组讨论指南。内容涉及四个领域：叶酸预防、神经外科学培训、后续护理和数据收集。多学科方法、与家庭的合作以及劳动力管道培训被确定为在全球健康环境中教育下一代 SB 研究人员和临床医生的指导主题。
脊髓脊膜膨出全球学习合作组织是一个由倡导者、临床医生和研究人员组成的跨国团体，其使命是推进与 SB 相关的全球健康教育。该合作组织从协作中吸取的经验教训正在被用来为学习者制定全球健康课程，这可能会改善全球 SB 患者的服务。
