Department of Humanities, Universitat Pompeu Fabra, Barcelona, Catalonia, Spain.
Research Group CELCA Dedal-Lit, Universitat de Lleida, Lleida, Catalonia, Spain.
Gerontologist. 2024 Jun 1;64(6). doi: 10.1093/geront/gnad175.
The complexities surrounding aging, dementia, and care are timely issues that transcend beyond institutional boundaries, evincing a critical debate on later life across disciplines. The aim of this study is to offer fresh insights into the intricate paradigms of living and growing older with dementia. The study focuses on the Nobel Prize-winning author Annie Ernaux's memoir I Remain in Darkness (1999), which provides a candid account of her mother's journey through dementia from its onset to the gradual decline.
This article employs the theoretical frameworks of literary gerontology, illness narratives and life writing to address the challenges of aging, dementia and care that are represented in Ernaux's memoir. It also addresses societal attitudes and stigma associated with aging and dementia by exploring the embarrassment that individuals and families experience when confronted with the deteriorating mental health of their loved ones.
Ernaux's memoir explores the nuances of dementia and caregiving within both the familial and institutional context, and sheds light on the complex relationship between a mother and a daughter. Through the act of witnessing, Ernaux embarks on a path of healing, which allows her to confront her past wounds and better navigate the challenges that lie ahead. However, Ernaux's confessional memoir also troubles the ethics of life writing and identity issues, and seems to perpetuate the pathologizing medical gaze through the exposure of her mother's vulnerability and intimacy in the face of dementia and care.
Ernaux's account of her mother's dementia and aging is both a confessional piece of writing and a narrative therapy, which reveals the challenges of aging, illness, and unresolved family tensions. Her work illuminates the interconnectedness between the past, present, and future, and shows that illness narratives can act as a catalyst for transformative change, identity formation, and self-reflection. The article addresses the intricacies of old age, showcasing how life writing and humanities-based inquiry can bring to the fore key aspects of the latest stages in life, which are often unvoiced because they represent the most unpleasant and feared aspects of aging in contemporary society.
老龄化、痴呆症和护理的复杂性是超越机构界限的热门话题,引发了各学科对晚年生活的激烈争论。本研究旨在为痴呆症患者的生活和老龄化提供新的见解。研究重点是诺贝尔奖得主安妮·埃尔诺(Annie Ernaux)的回忆录《在黑暗中继续》(1999 年),该回忆录坦率地描述了她母亲从痴呆症发作到逐渐衰退的历程。
本文运用文学老年学、疾病叙事和生活写作的理论框架,探讨了埃尔诺回忆录中所代表的老龄化、痴呆症和护理方面的挑战。它还通过探讨个人和家庭在面对亲人不断恶化的心理健康时所经历的尴尬,探讨了与老龄化和痴呆症相关的社会态度和耻辱感。
埃尔诺的回忆录探讨了家庭和机构背景下痴呆症和护理的细微差别,并揭示了母女之间复杂的关系。通过见证,埃尔诺开始了一段疗伤之旅,使她能够直面过去的创伤,更好地应对未来的挑战。然而,埃尔诺的自白回忆录也困扰了生活写作和身份问题的伦理,似乎通过暴露母亲在痴呆症和护理方面的脆弱性和亲密性,延续了将其病态化的医学视角。
埃尔诺对母亲痴呆症和衰老的描述既是一部自白作品,也是一种叙事疗法,揭示了老龄化、疾病和未解决的家庭紧张关系的挑战。她的作品揭示了过去、现在和未来之间的相互联系,并表明疾病叙事可以成为变革、身份形成和自我反思的催化剂。本文探讨了老年的复杂性,展示了生活写作和人文科学研究如何突出生命晚期的关键方面,这些方面往往因代表了当代社会老龄化最不愉快和最可怕的方面而被忽视。