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Go Zika Go:使用改装后的电动骑行玩具车改善先天性 Zika 综合征(CZS)患儿的移动能力:一项可行性研究。

Go Zika Go: feasibility study with modified motorized ride-on cars for the mobility of children with Congenital Zika Syndrome (CZS).

机构信息

Postgraduate Program in Rehabilitation Sciences, University of Rio Grande do Norte/Faculty of Health Sciences of Trairi, Santa Cruz, Brazil.

Department of Physical Therapy, Federal University of São Carlos, São Carlos, Brazil.

出版信息

Disabil Rehabil Assist Technol. 2024 Oct;19(7):2665-2678. doi: 10.1080/17483107.2023.2300052. Epub 2024 Jan 2.

DOI:10.1080/17483107.2023.2300052
PMID:38166551
Abstract

PURPOSE

To explore the feasibility of an intervention using modified ride-on cars in terms of acceptability and potential changes in goal attainment, mobility, social function, and participation of children with Congenital Zika Syndrome (CZS).

MATERIALS AND METHODS

A pre- and post-intervention feasibility study was conducted with children with CZS, levels IV and V of the Gross Motor Function Classification System (GMFCS). The intervention consisted of 12 weeks of training (3 times a week for 40 min per session) and 4 weeks of follow-up. The primary outcomes included adherence, satisfaction, and learning in mobility. Secondary outcomes encompassed goal attainment, mobility, social/cognitive function, and participation. Descriptive statistics were performed. To explore potential individual changes with the intervention, Wilcoxon test was used to analyze Pediatric Evaluation of Disability Inventory - Computer Adaptive Test (PEDI-CAT) data and Young Children's Participation and Environment Measure (YC-PEM)/Participation and Environment Measure for Children and Youth (PEM-CY), along with standard error measurements of the PEDI-CAT domains.

RESULTS

Four children participated (median age 4.75 years; two females: three at level V on the GMFCS). Adherence was 75% of the total intervention time, and family members reported being satisfied or very satisfied. Children showed gains in learning the use of the modified ride-on cars and an increase in goal attainment after the intervention. Individual changes were observed in the PEDI-CAT domains (mobility and social/cognitive), but there were no significant changes in participation outcomes.

CONCLUSIONS

Children with CZS at GMFCS levels IV and V can learn to use motorized ride-on cars, attainment goals, and experience satisfaction.

摘要

目的

探索使用改良骑乘玩具车进行干预的可行性,评估其在可接受性以及儿童目标达成、移动能力、社会功能和参与度方面的潜在变化,这些儿童患有先天性寨卡综合征(CZS)。

材料和方法

对患有 CZS 且粗大运动功能分级系统(GMFCS)为 IV 级和 V 级的儿童进行了一项干预前和干预后的可行性研究。干预包括 12 周的训练(每周 3 次,每次 40 分钟)和 4 周的随访。主要结局指标包括移动能力方面的依从性、满意度和学习情况。次要结局指标包括目标达成、移动能力、社会/认知功能和参与度。采用描述性统计分析。为了探索干预后的潜在个体变化,使用 Wilcoxon 检验分析小儿残疾评估量表-计算机自适应测试(PEDI-CAT)数据以及幼儿参与度和环境评估量表(YC-PEM)/儿童和青少年参与度和环境评估量表(PEM-CY),同时分析 PEDI-CAT 各领域的标准误差测量值。

结果

共有 4 名儿童参与(中位年龄 4.75 岁;2 名女性:3 名 GMFCS 分级为 V 级)。干预总时间的依从性为 75%,且家庭成员报告满意度或非常满意。儿童在使用改良骑乘玩具车方面表现出学习能力的提高,并且在干预后目标达成度有所增加。在 PEDI-CAT 领域(移动能力和社会/认知)观察到个体变化,但参与度结果没有显著变化。

结论

GMFCS 分级为 IV 级和 V 级的患有 CZS 的儿童可以学习使用电动骑乘玩具车,达成目标,并获得满足感。

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