Agle D, Gluck H, Pierce G F
Gen Hosp Psychiatry. 1987 Jan;9(1):11-7. doi: 10.1016/0163-8343(87)90095-8.
The psychologic impact of the risk of the acquired immune deficiency syndrome (AIDS) was evaluated by questionnaire survey of 116 hemophiliacs, age 16 or older, and 40 mates and 94 parents of hemophiliacs. Although the mean group distress ratings indicate a lessening of emotional discomfort over time, ongoing distress as well as interference with life activities are reported. Parents indicate more distress than either hemophiliacs or mates. Health preoccupation, the fear of being contagious, interference with parent-child intimacy and sexual intimacy between hemophiliac and mate are noted. A significant decrease in the use of clotting factor concentrates for the treatment of bleeding episodes is reported because these products have been linked to the transmission of AIDS. Although the overall hemophilic population is coping effectively with the AIDS risk, some hemophiliacs are at increased risk for psychiatric morbidity, social isolation, hypochondriasis, and medical noncompliance. Increased parental anxiety is likely to lead to over-protective child-rearing practices. Although it examines only the hemophilic population, this study describes stress responses likely to be present in other at risk groups and suggests that specific psychosocial interventions are urgently needed.
通过对116名16岁及以上的血友病患者、40名血友病患者的配偶以及94名血友病患者的父母进行问卷调查，评估了获得性免疫缺陷综合征（艾滋病）风险对心理的影响。尽管平均群体痛苦评分表明随着时间推移情绪不适有所减轻，但仍有持续的痛苦以及对生活活动的干扰被报告。父母表现出的痛苦比血友病患者或其配偶更多。发现存在对健康的过度关注、对具有传染性的恐惧、对亲子亲密关系的干扰以及血友病患者与其配偶之间性亲密关系的干扰。据报告，用于治疗出血发作的凝血因子浓缩物的使用显著减少，因为这些产品与艾滋病的传播有关。尽管总体血友病群体正在有效应对艾滋病风险，但一些血友病患者出现精神疾病、社会隔离、疑病症和医疗不依从的风险增加。父母焦虑的增加可能会导致过度保护的育儿方式。尽管该研究仅考察了血友病群体，但它描述了其他高危群体可能出现的应激反应，并表明迫切需要特定的心理社会干预措施。
