Senft K R, Eyster M E, Haverstick J, Bartlett G S
J Adolesc Health Care. 1981 Dec;2(2):87-91. doi: 10.1016/s0197-0070(81)80096-4.
To evaluate the clinical impression that hemophiliacs express a high level of interest in physical activities associated with a significant risk of major bleeding, a self-administered questionnaire was given to the 17 hemophilic adolescents 11-19 years of age in a state hemophilia program, and to 17 age-matched non-hemophilic adolescents. Scores for risk-taking attitudes, anticipated risk-taking behavior were calculated for 23 activities. Compared with controls, hemophiliacs neither express greater risk-taking attitudes, anticipate greater risk-taking behavior, nor appear more likely to carry out the behavior. Hemophiliacs 15-19 years of age appear more likely to carry out the stated risk-taking behaviors when compared with younger (ll-14-year-old) hemophiliacs but not when compared with matched older.non-hemophiliacs. Risk-taking activities selected by hemophiliacs tend to be adaptive for the limitations imposed by their illness. The conclusion that hemophiliacs appear more likely to engage in risk-taking behavior as they get older, although the express no greater overall interest in risk-taking than do non-hemophilic adolescents, needs to be confirmed by behavioral observations as home care programs improve the activity potential of young hemophiliacs.
为评估血友病患者对伴有重大出血风险的体育活动表现出高度兴趣这一临床印象，向某州血友病项目中17名11 - 19岁的血友病青少年以及17名年龄匹配的非血友病青少年发放了一份自填式问卷。针对23项活动计算了冒险态度得分和预期冒险行为得分。与对照组相比，血友病患者既没有表现出更强的冒险态度，也没有预期会有更多的冒险行为，而且似乎也不太可能实施这些行为。与较年轻（11 - 14岁）的血友病患者相比，15 - 19岁的血友病患者似乎更有可能实施所述的冒险行为，但与年龄匹配的非血友病青少年相比则不然。血友病患者选择的冒险活动往往适合于他们疾病所带来的限制。随着年龄增长，血友病患者似乎更有可能参与冒险行为，尽管他们对冒险的总体兴趣并不比非血友病青少年更高，这一结论需要通过行为观察来证实，因为家庭护理项目提高了年轻血友病患者的活动能力。
