School of Human Nutrition, McGill University, Sainte-Anne-de-Bellevue, Quebec H9X 3V9, Canada.
Division of Endocrinology, The Hospital for Sick Children, Toronto, Ontario, Canada.
Can J Diabetes. 2024 Apr;48(3):179-187.e3. doi: 10.1016/j.jcjd.2023.12.008. Epub 2024 Jan 3.
There are many educational resources for adolescents and young adults living with type 1 diabetes; however, it is unknown whether they address the breadth of topics related to transition to adult care. Our aim in this study was to collect educational resources relevant to Canadian youth and assess their quality and comprehensiveness in addressing the knowledge necessary for youth to prepare for interdependent management of their diabetes.
We conducted an environmental scan, a systematic assessment and analysis, of online education resources in English and French relevant to Canadian youth living with type 1 diabetes. Resources were screened using an open education resource evaluation grid and relevant resources were mapped to the Readiness for Emerging Adults with Diabetes Diagnosed in Youth, a validated diabetes transition readiness assessment tool.
From 44 different sources, 1,245 resources were identified and, of these, 760 were retained for analysis. The majority were webpages (50.1%) and downloadable PDFs (42.4%), and 12.1% were interactive. Most resources covered Diabetes Knowledge (46.0%), Health Behaviour (23.8%), Insulin and Insulin Pump Management (11.8% and 8.6%, respectively), and Health-care System Navigation (9.7%). Topic areas with the fewest resources were disability accommodations (n=5), sexual health/function (n=4), and locating trustworthy diabetes resources (n=3).
There are many resources available for those living with type 1 diabetes preparing to transition to adult care, with the majority pertaining to diabetes knowledge and the least for navigation of the health system. Few resources were available on the topics of substance use, sexual health, and reproductive health. An interactive presentation of these resources, as well as a central repository to house these resources, would improve access for youth and diabetes care providers during transition preparation.
有许多针对 1 型糖尿病青少年和年轻人的教育资源；然而，尚不清楚这些资源是否涵盖了与过渡到成人护理相关的广泛主题。我们在这项研究中的目的是收集与加拿大青年相关的教育资源，并评估其在解决青年为独立管理糖尿病所需知识方面的质量和全面性。
我们对与加拿大 1 型糖尿病青少年相关的英语和法语在线教育资源进行了环境扫描、系统评估和分析。使用开放教育资源评估网格筛选资源，并将相关资源映射到经过验证的糖尿病过渡准备评估工具《青年时期诊断为 1 型糖尿病的成年初期准备情况》，以评估资源。
从 44 个不同的来源中，确定了 1245 个资源，其中 760 个被保留进行分析。大多数资源是网页（50.1%）和可下载的 PDF（42.4%），12.1%是交互式的。大多数资源涵盖了糖尿病知识（46.0%）、健康行为（23.8%）、胰岛素和胰岛素泵管理（分别为 11.8%和 8.6%）和医疗保健系统导航（9.7%）。资源最少的主题领域是残疾住宿（n=5）、性健康/功能（n=4）和寻找可信赖的糖尿病资源（n=3）。
有许多资源可用于准备过渡到成人护理的 1 型糖尿病患者，其中大多数与糖尿病知识相关，而与医疗系统导航相关的资源最少。关于物质使用、性健康和生殖健康的资源很少。如果以互动的方式呈现这些资源，并建立一个集中的资源库来存放这些资源，将有助于在过渡准备期间为青年和糖尿病护理提供者提供更好的访问。
