Mendes Pereira Carla, Matos Mara, Carvalho Daniel, Macedo Patricia, Calheiros José M, Alves Janice, Paulino Ferreira Luís, Dias Teresa L, Neves Madeira Rui, Jones Fiona
Department of Physiotherapy, School of Health, Polytechnic University of Setúbal, 2910-761 Setúbal, Portugal.
Comprehensive Health Research Centre (CHRC), NOVA University of Lisbon, 1150-082 Lisbon, Portugal.
J Clin Med. 2024 Jan 4;13(1):300. doi: 10.3390/jcm13010300.
Evidence-informed interventions for stroke self-management support can influence functional capability and social participation. People with stroke should be offered self-management support after hospital discharge. However, in Portugal, there are no known programs of this nature. This study aimed to develop a person-centered and tailored blended care program for post-stroke self-management, taking into account the existing evidence-informed interventions and the perspectives of Portuguese people with stroke, caregivers, and health professionals. An exploratory sequential mixed methods approach was used, including qualitative methods during stakeholder consultation (stage 1) and co-production (stage 2) and quantitative assessment during prototyping (stage 3). After ethical approval, recruitment occurred in three health units. Results from a literature search led to the adaptation of the Bridges Stroke Self-Management Program. In stage one, 47 participants were interviewed, with two themes emerging: (i) Personalized support and (ii) Building Bridges through small steps. In stage two, the ComVida program was developed, combining in-person and digital approaches, supported by a workbook and a mobile app. In stage three, 56 participants evaluated prototypes, demonstrating a strong level of quality. Understandability and actionability of the developed tools obtained high scores (91-100%). The app also showed good usability (A-grade) and high levels of recommendation (5 stars).
基于证据的中风自我管理支持干预措施可影响功能能力和社会参与度。中风患者出院后应获得自我管理支持。然而,在葡萄牙,尚无此类已知项目。本研究旨在结合现有的基于证据的干预措施以及葡萄牙中风患者、护理人员和卫生专业人员的观点,制定一个以患者为中心且量身定制的中风后自我管理综合护理项目。研究采用了探索性序列混合方法,包括在利益相关者咨询阶段(第1阶段)和共同生产阶段(第2阶段)运用定性方法,以及在原型制作阶段(第3阶段)进行定量评估。获得伦理批准后,在三个卫生单位开展了招募工作。文献检索结果促使对“桥梁中风自我管理项目”进行了调整。在第1阶段,对47名参与者进行了访谈,出现了两个主题:(i)个性化支持和(ii)小步搭建桥梁。在第2阶段,开发了ComVida项目,将面对面和数字方式相结合,并辅以一本工作手册和一款移动应用程序。在第3阶段,56名参与者对原型进行了评估,结果显示质量水平较高。所开发工具的易懂性和可操作性获得了高分(91 - 100%)。该应用程序还显示出良好的可用性(A级)和较高的推荐率(5星)。