在葡萄牙环境中，从医院过渡到家中后的“生存证明”——一项多视角、纵向定性研究。
"A proof of life" through transition from hospital to home after a stroke in a Portuguese setting - a multi-perspective, longitudinal qualitative study.
机构信息
Instituto Politécnico de Setúbal, Escola Superior de Saúde, Departamento de Fisioterapia (Center for Interdisciplinary Applied Research in Health), Setúbal, Portugal.
Faculty of Health, Science, Social Care and Education - Kingston University, London, UK.
出版信息
Int J Qual Stud Health Well-being. 2023 Dec;18(1):2238986. doi: 10.1080/17482631.2023.2238986.
PURPOSE
The impact of a stroke is particularly evident during the transition home, with reported unmet needs. However, little is known about post-stroke adaptation in Portugal. This study aimed to understand how Portuguese people with stroke and their informal carers/family adapt over time, and how health professionals support their adaptation.
METHODS
A multi-perspective, longitudinal qualitative study was conducted using in-depth semi-structured interviews one and six months after inpatient discharge. A purposive sample of 24 participants (8 triads) participated. Thematic and narrative analysis strategies were used.
RESULTS
Three themes were identified: . These suggest the importance of time and gradual adjustment of health professionals' approach throughout the rehabilitation process tailored to people with stroke' and carers' needs. Both valued positive thoughts and support from others to adjust life goals and find a balance between a mutual/bidirectional support and time for themselves.
CONCLUSIONS
Findings show that the manner in which changes after a stroke are approached may be positively transformed to provide strength. As a result of the deeper understanding gained from this study, health professionals may be better placed to acknowledge the needs of people with stroke and carers and find effective ways of supporting them.
目的
中风的影响在出院回家的过渡阶段尤为明显，存在未满足的需求。然而，关于葡萄牙中风患者的适应情况知之甚少。本研究旨在了解葡萄牙中风患者及其非正式照顾者/家人如何随着时间的推移适应，以及卫生专业人员如何支持他们的适应。
方法
采用多视角、纵向定性研究方法，在住院出院后一个月和六个月进行深入的半结构化访谈。共纳入 24 名参与者（8 个三人组）。采用主题和叙事分析策略。
结果
确定了三个主题：中风后的适应、家庭的适应和卫生专业人员的支持。这些主题表明，在康复过程中，时间的重要性和卫生专业人员方法的逐渐调整至关重要，以满足中风患者和照顾者的需求。双方都重视积极的想法和来自他人的支持，以调整生活目标，并在相互/双向支持和自我时间之间找到平衡。
结论
研究结果表明，应对中风后变化的方式可能会被积极转化，从而提供力量。通过这项研究获得了更深入的理解，卫生专业人员可能能够更好地了解中风患者和照顾者的需求，并找到有效的支持方式。
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