Vervoort Dominique, Jin Hyerang, Edwin Frank, Kumar Raman Krishna, Malik Mahim, Tapaua Noah, Verstappen Amy, Hasan Babar S
Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
Division of Cardiac Surgery, University of Toronto, Toronto, Ontario, Canada.
CJC Pediatr Congenit Heart Dis. 2023 Oct 10;2(6Part B):453-463. doi: 10.1016/j.cjcpc.2023.10.001. eCollection 2023 Dec.
Paediatric and congenital heart disease (PCHD) is common but remains forgotten on the global health agenda. Congenital heart disease is the most frequent major congenital anomaly, affecting approximately 1 in every 100 live births. In high-income countries, most children now live into adulthood, whereas in low- and middle-income countries, over 90% of patients do not get the care they need. Rheumatic heart disease is the most common acquired cardiovascular disease in children and adolescents. While almost completely eradicated in high-income countries, over 30-40 million people live with rheumatic heart disease in low- and middle-income countries. Challenges exist in the care for PCHD and, increasingly, adult congenital heart disease (ACHD) worldwide. In this review, we summarize the current status of PCHD and ACHD care through the health systems lens of workforce, infrastructure, financing, service delivery, information management and technology, and governance. We further highlight gaps in knowledge and opportunities moving forward to improve access to care for all those living with PCHD or ACHD worldwide.
CJC Pediatr Congenit Heart Dis. 2023-10-10
2017-11-3
Circulation. 2016-6-14
Curr Cardiol Rep. 2018-10-11
Children (Basel). 2019-2-25
J Pak Med Assoc. 2020-12
J Cardiothorac Surg. 2025-7-28
Int J Cardiol Congenit Heart Dis. 2025-6-28
BMC Pediatr. 2025-5-30
Indian J Thorac Cardiovasc Surg. 2025-6
Ann Pediatr Cardiol. 2024
J Multidiscip Healthc. 2023-1-28
World J Pediatr Congenit Heart Surg. 2022-3