Saraux Alain, da Mota Licia Maria Henrique, Dixit Sanjay, Gibofsky Allan, Matsubara Tsukasa, Mulvey Amy, Koehn Cheryl, Mortezavi Mahta, Segovia Michelle, Kessouri Meriem
Rheumatology Unit, University Hospital, Hôpital de La Cavale Blanche, Brest, France.
Unidade de Reumatologia, Universidade de Brasília, Brasília, Brazil.
Rheumatol Ther. 2024 Apr;11(2):257-268. doi: 10.1007/s40744-023-00629-y. Epub 2024 Jan 13.
The global coronavirus 2019 (COVID-19) pandemic created many challenges in healthcare provision. This study aimed to evaluate the global impact of the COVID-19 pandemic on people living with rheumatoid arthritis (RA).
The RA Narrative COVID-19 survey was conducted online among people with RA who resided in Brazil, Canada, France, Japan, and the US from August to September 2021. The survey examined disease management, healthcare access and experiences, and participant preferences for interactions with their doctor.
Overall, 500 participants completed the survey: 100 each resided in Brazil, Canada, France, Japan, and the US. Emotional well-being was the aspect of disease management most reported to be negatively impacted by the pandemic (55% of participants); 'having more anxiety and/or stress' during the pandemic was the top factor that made controlling RA symptoms more difficult (49% of participants). In comparison, the top factor that made controlling RA symptoms easier was 'having a less busy schedule' (35% of participants). More participants had virtual appointments during versus pre-pandemic (53% vs. 13%, respectively) and participants were equally satisfied with the overall quality of care received via virtual and in-person appointments (76% of participants were 'satisfied' or 'very satisfied' with both). However, participants generally preferred in-person over virtual appointments, except for prescription refills, for which preferences were similar (39% vs. 36%, respectively).
This survey suggests that the COVID-19 pandemic did negatively impact some aspects of disease management for people living with RA but had positive impacts on the utilization of virtual care. Although participants generally preferred in-person appointments, these results position virtual care as an appropriate means for routine follow-ups.
2019年全球冠状病毒病（COVID-19）大流行给医疗服务带来了诸多挑战。本研究旨在评估COVID-19大流行对类风湿性关节炎（RA）患者的全球影响。
2021年8月至9月，对居住在巴西、加拿大、法国、日本和美国的类风湿性关节炎患者进行了在线RA COVID-19叙事性调查。该调查考察了疾病管理、医疗服务获取与体验，以及参与者对与医生互动方式的偏好。
总体而言，500名参与者完成了调查，巴西、加拿大、法国、日本和美国各有100名。情绪健康是疾病管理中最常被报告受到大流行负面影响的方面（55%的参与者）；大流行期间“焦虑和/或压力增加”是使类风湿性关节炎症状控制更困难的首要因素（49%的参与者）。相比之下，使类风湿性关节炎症状控制更容易的首要因素是“日程安排不那么繁忙”（35%的参与者）。与大流行前相比，更多参与者在大流行期间进行了虚拟预约（分别为53%和13%），并且参与者对通过虚拟预约和面对面预约获得的总体护理质量同样满意（76%的参与者对两者都“满意”或“非常满意”）。然而，除了续方外，参与者通常更喜欢面对面预约而非虚拟预约，续方的偏好相似（分别为39%和36%）。
这项调查表明，COVID-19大流行确实对类风湿性关节炎患者疾病管理的某些方面产生了负面影响，但对虚拟医疗的利用产生了积极影响。尽管参与者通常更喜欢面对面预约，但这些结果表明虚拟医疗是常规随访的合适方式。
