Fitzmaurice Bethany C, Grenfell Rebecca L, Heneghan Nicola R, Rayen Asius T A, Soundy Andrew A
Department of Pain Management, Sandwell and West Birmingham NHS Trust, Birmingham B18 7QH, UK.
School of Sport, Exercise and Rehabilitation Sciences, University of Birmingham, Birmingham B15 2TT, UK.
Behav Sci (Basel). 2024 Jan 11;14(1):47. doi: 10.3390/bs14010047.
Research is needed that can provide an illustration of the different biopsychosocial and environmental experiences of people with fibromyalgia to consider how healthcare professionals can best engage with the challenges that are faced. Qualitative research is well-positioned to do this. The current study used interpretive hermeneutic phenomenology situated within a pragmatic worldview, the aim being to obtain a deeper exploration of the fibromyalgia experience prior to commencing a novel intervention. A purposive sample of individuals with fibromyalgia were selected to undertake a single interview. The interviews were analysed using a thematic analysis. The themes identified key processes of the experience. A total of 16 participants (mean age: 47.1 years) took part. Three themes and 15 sub-themes were identified, together with a process linking different experiences together. The research from this small cohort provides a clear identification of multiple components influencing the experience of fibromyalgia and the decisions around lifestyle and choices made. From this, a novel decomposition/recomposition spiral has been identified, which will benefit patients and healthcare professionals alike. An earlier diagnosis and, thus, earlier and broader treatment options can help to improve functional outcomes.
需要开展研究,以说明纤维肌痛患者不同的生物心理社会和环境经历,从而考虑医疗保健专业人员如何才能最好地应对所面临的挑战。定性研究很适合做这项工作。本研究采用了基于实用主义世界观的解释性诠释现象学,目的是在开始一项新干预措施之前,对纤维肌痛经历进行更深入的探究。选取了一个有目的的纤维肌痛患者样本进行单次访谈。采用主题分析法对访谈进行分析。这些主题确定了经历的关键过程。共有16名参与者(平均年龄:47.1岁)参与。确定了三个主题和15个子主题,以及一个将不同经历联系在一起的过程。这个小队列的研究明确了影响纤维肌痛经历以及围绕生活方式和所做选择的决策的多个因素。由此,确定了一种新的分解/重组螺旋,这将使患者和医疗保健专业人员都受益。更早的诊断以及因此更早和更广泛的治疗选择有助于改善功能结局。