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为心理健康设计生活体验库:英国精神卫生服务中综合现实主义综合与基于经验的共同设计研究。

Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study in UK mental health services.

机构信息

Spectrum Centre for Mental Health Research, Division of Health Research, Lancaster University, Lancaster, UK

Lancaster University Library, Lancaster University, Lancaster, UK.

出版信息

BMJ Open. 2024 Jan 31;14(1):e081188. doi: 10.1136/bmjopen-2023-081188.

DOI:10.1136/bmjopen-2023-081188
PMID:38296304
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10831458/
Abstract

OBJECTIVE

Living Library events involve people being trained as living 'Books', who then discuss aspects of their personal experiences in direct conversation with attendees, referred to as 'Readers'. This study sought to generate a realist programme theory and a theory-informed implementation guide for a Library of Lived Experience for Mental Health (LoLEM).

DESIGN

Integrated realist synthesis and experience-based co-design.

SETTING

Ten online workshops with participants based in the North of England.

PARTICIPANTS

Thirty-one participants with a combination of personal experience of using mental health services, caring for someone with mental health difficulties and/or working in mental health support roles.

RESULTS

Database searches identified 30 published and grey literature evidence sources which were integrated with data from 10 online co-design workshops conducted over 12 months. The analysis generated a programme theory comprising five context-mechanism-outcome (CMO) configurations. Findings highlight how establishing psychological safety is foundational to productive Living Library events (CMO 1). For Readers, direct conversations humanise others' experiences (CMO 2) and provide the opportunity to flexibly explore new ways of living (CMO 3). Through participation in a Living Library, Books may experience personal empowerment (CMO 4), while the process of self-authoring and co-editing their story (CMO 5) can contribute to personal development. This programme theory informed the co-design of an implementation guide highlighting the importance of tailoring event design and participant support to the contexts in which LoLEM events are held.

CONCLUSIONS

The LoLEM has appeal across stakeholder groups and can be applied flexibly in a range of mental health-related settings. Implementation and evaluation are required to better understand the positive and negative impacts on Books and Readers.

TRIAL REGISTRATION NUMBER

PROSPERO CRD42022312789.

摘要

目的

“活体图书馆”活动涉及将人们培训为活体“书籍”,然后与被称为“读者”的与会者直接就其个人经历的各个方面进行讨论。本研究旨在为心理健康领域的生活经验图书馆(LoLEM)生成一个真实的方案理论和一个理论导向的实施指南。

设计

综合真实主义综合和基于经验的共同设计。

地点

在英格兰北部的 10 个在线研讨会,参与者。

参与者

31 名参与者,他们结合了使用心理健康服务、照顾有心理健康困难的人以及/或从事心理健康支持角色的个人经验。

结果

数据库搜索确定了 30 个已发表的和灰色文献证据来源,这些来源与 12 个月内进行的 10 次在线共同设计研讨会的数据相结合。分析生成了一个包含五个上下文-机制-结果(CMO)配置的方案理论。研究结果突出了如何建立心理安全感是富有成效的活体图书馆活动的基础(CMO1)。对于读者来说,直接对话可以使他人的经历人性化(CMO2),并提供灵活探索新的生活方式的机会(CMO3)。通过参与活体图书馆,书籍可能会体验到个人赋权(CMO4),而自我创作和共同编辑他们的故事的过程(CMO5)可以促进个人发展。该方案理论为实施指南的共同设计提供了信息,该指南强调了根据 LoLEM 活动举办的背景来调整活动设计和参与者支持的重要性。

结论

LoLEM 在利益相关者群体中具有吸引力,可以灵活应用于各种心理健康相关的环境。需要实施和评估,以更好地了解对书籍和读者的积极和消极影响。

试验注册编号

PROSPERO CRD42022312789。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/192a/10831458/3011990c4f06/bmjopen-2023-081188f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/192a/10831458/100439c9aa71/bmjopen-2023-081188f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/192a/10831458/3011990c4f06/bmjopen-2023-081188f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/192a/10831458/100439c9aa71/bmjopen-2023-081188f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/192a/10831458/3011990c4f06/bmjopen-2023-081188f02.jpg

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本文引用的文献

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The Involvement of Service Users and People With Lived Experience in Mental Health Care Innovation Through Design: Systematic Review.通过设计让服务使用者和有亲身经历者参与精神卫生保健创新:系统评价
JMIR Ment Health. 2023 Jul 25;10:e46590. doi: 10.2196/46590.
2
Power to the people? A co-produced critical review of service user involvement in mental health professions education.权力归人民?服务使用者参与精神健康专业教育的共同制作批判性评论。
Adv Health Sci Educ Theory Pract. 2024 Mar;29(1):273-300. doi: 10.1007/s10459-023-10240-z. Epub 2023 May 29.
3
Designing a library of lived experience for mental health (LoLEM): protocol for integrating a realist synthesis and experience based codesign approach.
为心理健康设计生活体验库(LoLEM):整合现实主义综合与基于经验的共同设计方法的方案。
BMJ Open. 2023 Mar 8;13(3):e068548. doi: 10.1136/bmjopen-2022-068548.
4
A Systematic Narrative Review of Implementation, Processes, and Outcomes of Human Library.系统叙事性综述:人类图书馆的实施、过程和结果
Int J Environ Res Public Health. 2023 Jan 30;20(3):2485. doi: 10.3390/ijerph20032485.
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A framework for implementing Patient and Public Involvement in mental health research: The PATHWAY research programme benchmarked against NIHR standards.实施精神健康研究中的患者和公众参与的框架:PATHWAY 研究计划对标 NIHR 标准。
Health Expect. 2023 Apr;26(2):640-650. doi: 10.1111/hex.13676. Epub 2023 Jan 10.
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Training of Lived Experience Workforces: A Rapid Review of Content and Outcomes.实践经验工作者培训:内容和结果的快速综述。
Adm Policy Ment Health. 2023 Mar;50(2):177-211. doi: 10.1007/s10488-022-01232-z. Epub 2022 Nov 10.
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Effect of human library intervention on mental health literacy: a multigroup pretest-posttest study.图书馆干预对心理健康素养的影响:一项多群组前后测研究。
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A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance.制定和评估复杂干预措施的新框架:对医学研究理事会指南的更新。
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Uses and Misuses of Recorded Mental Health Lived Experience Narratives in Healthcare and Community Settings: Systematic Review.记录心理健康生活经历叙事在医疗保健和社区环境中的使用和误用:系统评价。
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