Hunfeld M, Dulfer K, Del Castillo J, Vázquez M, Buysse C M P
Department of Neonatal and Pediatric Intensive Care Unit, Division of Pediatric Intensive Care Unit, Erasmus MC Children's Hospital, Rotterdam, the Netherlands.
Pediatric Intensive Care Department, Hospital General Universitario Gregorio Marañón, Instituto de Investigación Sanitaria Gregorio Marañón, Madrid, Primary Care Interventions to Prevent Maternal and Child Chronic Diseases of Perinatal and Development Origen Network (RICORS-RD21/0012/0011), Spain.
Resusc Plus. 2024 Feb 1;17:100563. doi: 10.1016/j.resplu.2024.100563. eCollection 2024 Mar.
Long-term outcome studies after pediatric cardiac arrest (CA) are few. They require a CA registry and dedicated outcome teams. Learning about the long-term outcomes is very important for developing prognostication guidelines, improving post-cardiac care, counseling caregivers about the future of their child, and creating opportunities for therapeutic intervention studies to improve outcomes. Few PICUs worldwide provide a multidisciplinary follow-up program as routine practice at an outpatient clinic with standardized measurements, using validated instruments including neuropsychological assessments by psychologists. The primary goal of such a follow-up program should be to provide excellent care to children and their caregivers, thereby resulting in a high attendance. Pediatric psychologists, neurologists and pediatricians/pediatric intensivists should ideally be involved to screen for delayed development and psychosocial problems and offer appropriate care at the same time. Preferably, outcomes should consist of evaluation of morbidity (physical and neuropsychological), functional health and Health Related Quality Of Life (QoL) of the patient and their caregivers.
儿童心脏骤停（CA）后的长期预后研究较少。这些研究需要一个心脏骤停登记处和专门的预后研究团队。了解长期预后对于制定预后指南、改善心脏骤停后护理、为照顾者提供有关其子女未来的咨询，以及为改善预后的治疗干预研究创造机会非常重要。全球很少有儿科重症监护病房（PICU）将多学科随访计划作为门诊的常规做法，采用标准化测量方法，并使用经过验证的工具，包括由心理学家进行的神经心理学评估。这种随访计划的主要目标应该是为儿童及其照顾者提供优质护理，从而提高随访率。理想情况下，儿科心理学家、神经科医生和儿科医生/儿科重症监护医生应参与筛查发育迟缓及心理社会问题，并同时提供适当护理。最好是，预后评估应包括对患者及其照顾者的发病率（身体和神经心理方面）、功能健康状况以及健康相关生活质量（QoL）的评估。
