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欧洲器官移植学会(ESOT)关于基于价值的医疗保健的肝移植结局衡量指标的共识声明。

European Society for Organ Transplantation (ESOT) Consensus Statement on Outcome Measures in Liver Transplantation According to Value-Based Health Care.

机构信息

Department of Medicine and Surgery, University of Milano-Bicocca, Milan, Italy.

Liver Unit, ASST Grande Ospedale Metropolitano (GOM) Niguarda, Milan, Italy.

出版信息

Transpl Int. 2024 Jan 25;36:12190. doi: 10.3389/ti.2023.12190. eCollection 2023.

DOI:10.3389/ti.2023.12190
PMID:38332850
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10850237/
Abstract

Liver transplantation is a highly complex, life-saving, treatment for many patients with advanced liver disease. Liver transplantation requires multidisciplinary teams, system-wide adaptations and significant investment, as well as being an expensive treatment. Several metrics have been proposed to monitor processes and outcomes, however these lack patient focus and do not capture all aspects of the process. Most of the reported outcomes do not capture those outcomes that matter to the patients. Adopting the principles of Value-Based Health Care (VBHC), may provide an opportunity to develop those metrics that matter to patients. In this article, we present a Consensus Statement on Outcome Measures in Liver Transplantation following the principles of VBHC, developed by a dedicated panel of experts under the auspices of the European Society of Organ Transplantation (ESOT) Guidelines' Taskforce. The overarching goal is to provide a framework to facilitate the development of outcome measures as an initial step to apply the VMC paradigm to liver transplantation.

摘要

肝移植是治疗许多晚期肝病患者的一种高度复杂的、救生的治疗方法。肝移植需要多学科团队、全系统适应和大量投资,而且是一种昂贵的治疗方法。已经提出了几种指标来监测过程和结果,但这些指标缺乏患者关注,并且没有捕捉到过程的所有方面。大多数报告的结果并没有捕捉到对患者重要的结果。采用基于价值的医疗保健(VBHC)原则,可能为开发对患者重要的指标提供机会。在本文中,我们根据欧洲器官移植学会(ESOT)指南工作组的专门专家小组的 VBHC 原则,提出了肝移植后结局衡量标准的共识声明。首要目标是提供一个框架,以促进结局衡量标准的制定,作为将 VMC 范式应用于肝移植的初始步骤。

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JHEP Rep. 2023 Sep 13;5(12):100907. doi: 10.1016/j.jhepr.2023.100907. eCollection 2023 Dec.
2
Novel Endpoints in Solid Organ Transplantation: Targeting Patient-reported Outcome Measures.实体器官移植中的新终点:以患者报告的结局指标为靶向。
Transplantation. 2023 Sep 1;107(9):1895-1902. doi: 10.1097/TP.0000000000004537. Epub 2023 Feb 7.
3
ESOT Consensus Platform for Organ Transplantation: Setting the Stage for a Rigorous, Regularly Updated Development Process.ESOT 器官移植共识平台:为严格、定期更新的开发过程奠定基础。
Transpl Int. 2022 Oct 24;35:10915. doi: 10.3389/ti.2022.10915. eCollection 2022.
4
Implementation of patient-reported outcome measures in a heart transplant recipient registry: First step toward a patient-centered approach.在心脏移植受者登记处实施患者报告的结局测量:迈向以患者为中心方法的第一步。
Clin Transplant. 2022 Aug;36(8):e14708. doi: 10.1111/ctr.14708. Epub 2022 Jun 5.
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Systematic review: The quality of life of patients with biliary atresia.系统评价:胆道闭锁患者的生活质量。
J Pediatr Surg. 2022 Dec;57(12):934-946. doi: 10.1016/j.jpedsurg.2022.03.013. Epub 2022 Mar 21.
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Anesthesiol Clin. 2022 Mar;40(1):xv-xvi. doi: 10.1016/j.anclin.2021.11.013. Epub 2022 Feb 15.
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