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HIV 对患者生活的影响:一项现象学定性研究。

The effect of HIV on patients' lives: a phenomenological qualitative study.

机构信息

Department of Medical Surgical Nursing, College of Nursing, Taibah University, Medina, Saudi Arabia.

Department of Psychiatric Nursing, College of Nursing, Taibah University, Medina, Saudi Arabia.

出版信息

Int J Qual Stud Health Well-being. 2024 Dec;19(1):2315634. doi: 10.1080/17482631.2024.2315634. Epub 2024 Feb 10.

Abstract

INTRODUCTION

Human immunodeficiency virus (HIV) infection poses a significant threat to the immune system, compromising the body's ability to combat diseases and infections. The Ministry of Health in Saudi Arabia reported an HIV incidence rate of 3 cases per 10,000 individuals. This study aimed to gain insight into the lived experience of Saudi patients living with HIV.

METHODS

Employing a qualitative phenomenological approach, this study conducted in-depth interviews with 16 HIV patients (10 men, 6 women) between January 2023 and May 2023.

RESULTS

Thematic data analysis highlighted three overarching themes and four subthemes. "Fear of the Future" encompassed subthemes including the fear of infecting a family member, fear of marriage, fear of employment recruitment, and fear of scandals. "Hopelessness" reflected the profound emotional state experienced by patients. "Overcoming Adversity" captured the resilience and strength demonstrated by individuals facing the challenges of living with HIV.

CONCLUSION

Saudi patients diagnosed with HIV encounter numerous obstacles in their daily lives. The fear of the future, including concerns such as infecting family members, marriage prospects, employment opportunities, and potential social repercussions, significantly impacts their overall well-being. By understanding the lived experience of HIV patients in Saudi Arabia, healthcare providers and policymakers can better support and enhance the quality of life for this population.

摘要

简介

人类免疫缺陷病毒(HIV)感染对免疫系统构成重大威胁,削弱了身体抵抗疾病和感染的能力。沙特卫生部报告称,HIV 的发病率为每 10000 人中有 3 例。本研究旨在深入了解沙特 HIV 感染者的生活体验。

方法

本研究采用定性现象学方法,于 2023 年 1 月至 5 月期间对 16 名 HIV 患者(10 名男性,6 名女性)进行了深入访谈。

结果

主题数据分析突出了三个总体主题和四个子主题。“对未来的恐惧”包括担心感染家庭成员、对婚姻的恐惧、对就业招聘的恐惧和对丑闻的恐惧。“绝望”反映了患者所经历的深刻情绪状态。“克服逆境”体现了个体在面对 HIV 生活挑战时所展现的韧性和力量。

结论

沙特被诊断出患有 HIV 的患者在日常生活中遇到了许多障碍。对未来的恐惧,包括担心感染家庭成员、婚姻前景、就业机会和可能的社会影响,对他们的整体幸福感产生了重大影响。通过了解沙特 HIV 患者的生活体验,医疗保健提供者和政策制定者可以更好地支持和提高这一人群的生活质量。

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