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J Int AIDS Soc. 2020 Jun;23(6):e25490. doi: 10.1002/jia2.25490.
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Quality Of Life And Stigma Among People Living With HIV/AIDS In Iran.伊朗艾滋病毒/艾滋病感染者的生活质量与耻辱感
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AIDS Care. 2020 Apr;32(4):512-517. doi: 10.1080/09540121.2019.1695732. Epub 2019 Dec 5.
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The social stigma of HIV-AIDS: society's role.人类免疫缺陷病毒-获得性免疫综合征的社会污名:社会的作用。
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Religion and HIV/AIDS Stigma: Considerations for the Nursing Profession.宗教与艾滋病毒/艾滋病污名化:护理专业的考量
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HIV感染患者面对疾病阳性诊断的生活体验:一项现象学研究。

The lived experience of HIV-infected patients in the face of a positive diagnosis of the disease: a phenomenological study.

作者信息

Imani Behzad, Zandi Shirdel, Khazaei Salman, Mirzaei Mohamad

机构信息

Department of Operating Room, School of Paramedicine, Hamadan University of Medical Sciences, Hamadan, Iran.

Department of Operating Room, Student Research Committee, Hamadan University of Medical Sciences, Hamadan, Iran.

出版信息

AIDS Res Ther. 2021 Dec 7;18(1):95. doi: 10.1186/s12981-021-00421-4.

DOI:10.1186/s12981-021-00421-4
PMID:34876162
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8650359/
Abstract

BACKGROUND

AIDS as a human crisis may lead to devastating psychological trauma and stress for patients. Therefore, it is necessary to study different aspects of their lives for better support and care. Accordingly, this study aimed to explain the lived experience of HIV-infected patients in the face of a positive diagnosis of the disease.

METHODS

This qualitative study is a descriptive phenomenological study. Sampling was done purposefully and participants were selected based on the inclusion and exclusion criteria. Data collection was conducted, using semi-structured interviews. Data analysis was performed using Colaizzi's method.

RESULTS

12 AIDS patients participated in this study. As a result of data analysis, 5 main themes and 12 sub-themes were identified, which include: emotional shock (loathing, motivation of social isolation), the fear of the consequences (fear of the death, fear of loneliness, fear of disgrace), the feeling of the guilt (feeling of regret, feeling guilty, feeling of conscience-stricken), the discouragement (suicidal ideation, disappointment), and the escape from reality (denial, trying to hide).

CONCLUSION

The results of this study showed that patients will experience unpleasant phenomenon in the face of the positive diagnosis of the disease and will be subjected to severe psychological pressures that require attention and support of medical and laboratory centers.

摘要

背景

艾滋病作为一场人类危机,可能给患者带来毁灭性的心理创伤和压力。因此,有必要研究他们生活的不同方面,以便提供更好的支持和护理。据此,本研究旨在阐释艾滋病病毒感染患者在疾病确诊呈阳性时的生活体验。

方法

本定性研究为描述性现象学研究。采用目的抽样法,根据纳入和排除标准选取参与者。通过半结构式访谈收集数据。运用科拉齐方法进行数据分析。

结果

12名艾滋病患者参与了本研究。数据分析结果确定了5个主要主题和12个子主题,包括:情绪冲击(厌恶、社交隔离的动机)、对后果的恐惧(对死亡的恐惧、对孤独的恐惧、对耻辱的恐惧)、内疚感(后悔感、负罪感、愧疚感)、气馁(自杀念头、失望)以及逃避现实(否认、试图隐瞒)。

结论

本研究结果表明,患者在疾病确诊呈阳性时会经历不愉快的现象,并承受巨大的心理压力,这需要医疗和检验中心给予关注与支持。