Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Plesmanlaan 121, 1066 CX, Amsterdam, the Netherlands.
Department of Surgical Oncology, Erasmus MC Cancer Institute, Dr. Molewaterplein 40, 3015 GD, Rotterdam, the Netherlands.
Breast. 2024 Apr;74:103676. doi: 10.1016/j.breast.2024.103676. Epub 2024 Feb 11.
The sustainability of healthcare systems is under pressure. Unlike care for many other chronic diseases, cancer care has yet to empower patients in effectively self-managing both the medical and emotional consequences of their condition, including adapting to changes in lifestyle and work, which is essential to achieve optimal health and recovery. Although proposed as a potential solution for sustainable healthcare and support for optimal health and recovery already decades ago, practical implementation of digital care lags behind. We believe electronic patient reported outcome measures (ePROMs) could play an important role in creating sustainable healthcare, both to guide complex treatment pathways and to empower survivors to self-manage consequences of diagnosis and treatment. That is, ePROMs can be used for screening and monitoring of symptoms, but also for treatment decision-making and to facilitate communication about quality of life. We therefore see opportunities for improvements in quality of care, quality of life, and survival of cancer patients, as well as research opportunities, as ePROMs collection can lead to better understanding of care needs. The '10 Actions for Change report' of the Advanced Breast Cancer Global Alliance stresses a critical need for improvement of care for metastatic breast cancer (MBC) patients. We therefore in this paper focus on MBC care and research.
医疗体系的可持续性面临压力。与许多其他慢性病的护理不同,癌症护理尚未使患者能够有效管理自身状况的医疗和情绪后果,包括适应生活方式和工作的变化,这对于实现最佳健康和康复至关重要。尽管数字护理几十年前就已被提议作为可持续医疗保健和支持最佳健康和康复的潜在解决方案,但实际实施却落后了。我们认为电子患者报告结局测量(ePROM)在创建可持续医疗保健方面可以发挥重要作用,既能指导复杂的治疗途径,又能使幸存者能够自我管理诊断和治疗的后果。也就是说,ePROM 可用于症状的筛查和监测,也可用于治疗决策,并促进关于生活质量的沟通。因此,我们看到了改善癌症患者护理质量、生活质量和生存机会的机会,以及研究机会,因为 ePROM 的收集可以更好地了解护理需求。高级乳腺癌全球联盟的“10 项变革行动报告”强调了改善转移性乳腺癌(MBC)患者护理的迫切需要。因此,我们在本文中专注于 MBC 护理和研究。