Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra/ Faculty of Medicine, University of Coimbra, Coimbra, Portugal.
Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom.
ARP Rheumatol. 2024 Jul 1;3(Apr-Jun):81-82. doi: 10.63032/JBRG6950.
In inflammatory rheumatic diseases, including, systemic sclerosis (SSc) there is growing evidence that treatment strategies should not only target disease control in terms of clinical features and laboratory tests but consider distinct interventions to mitigate all domains of perceived disease impact. The results of a multicentric work based on data from the Rheumatic Diseases Portuguese Registry (Reuma.pt)/Scleroderma indicated that the optimization of outcomes for patients with SSc would in all probability require assessment of the needs of individual patients and consider adjunctive interventions in clinical practice to mitigate all significantly affected domains of disease impact. Recently, in June 2023, a task force under the auspices of EULAR, comprising rheumatologists, health professionals and patient advocates published four overarching principles and twelve recommendations for the non-pharmacological management of people living with SSc and systemic lupus erythematosus (SLE).
在炎症性风湿病中，包括系统性硬化症（SSc），越来越多的证据表明，治疗策略不仅应针对临床特征和实验室检查来控制疾病，还应考虑针对减轻疾病影响的所有领域的特定干预措施。一项基于葡萄牙风湿病登记处（Reuma.pt）/硬皮病数据的多中心工作的结果表明，为 SSc 患者优化治疗结果很可能需要评估患者的个体需求，并在临床实践中考虑辅助干预措施，以减轻所有受显著影响的疾病影响领域。最近，2023 年 6 月，EULAR 下属的一个工作组由风湿病学家、卫生专业人员和患者权益倡导者组成，发布了四项关于 SSc 和系统性红斑狼疮（SLE）患者非药物治疗的总体原则和十二条建议。
