Patkar Prajakta, Shah Henal, Sahu Samiksha
Department of Psychiatry, Topiwala National Medical College and BYL Nair Charitable Hospital, Mumbai, Maharashtra, India.
Department of Psychiatry, Gandhi Medical College, Bhopal, Madhya Pradesh, India.
Ind Psychiatry J. 2023 Nov;32(Suppl 1):S243-S249. doi: 10.4103/ipj.ipj_216_23. Epub 2023 Nov 30.
Attention deficit hyperactivity disorder (ADHD) is one of the most commonly diagnosed developmental disorders and is common among referrals to child guidance clinics.
This study aimed to study the impact of the lockdown during the coronavirus disease 2019 (COVID-19) pandemic on the mother's understanding of ADHD and the burden faced by her.
A mixed-methods design with a combination of a qualitative and quantitative approach was adopted. An in-depth in-person semi-structured interview with the participant's mother was conducted. The qualitative and quantitative part of the study consisted of burden assessment by the Zarit Caregiver Burden Scale. The responses were transcribed, and themes were identified.
As far as understanding the disorder was concerned, the major themes identified were "Knew about the child's problems from teachers but online schooling made me see the child's issues in person" and "Knew about the illness but more time led to bonding and understanding the child." When questioned about the burden faced, the major themes that evolved were "Increased exhaustion taking care of a child 24/7" and "Increased burden as one felt angry and irritated with the child, the school, and the family." The Zarit caregiver questionnaire revealed a statistically significant difference in the burden of care before and after the pandemic, with a greater number of mothers falling in the mild to moderate and severe categories of burden.
The COVID-19 pandemic increased the caregiver burden for mothers of children with ADHD. Their understanding of their child's disorder increased significantly as they could spend more time and devise different ways and means of helping their child in academics and other areas.
注意力缺陷多动障碍（ADHD）是最常被诊断出的发育障碍之一，在转介到儿童指导诊所的病例中很常见。
本研究旨在探讨2019年冠状病毒病（COVID-19）大流行期间的封锁措施对母亲对ADHD的理解以及她所面临负担的影响。
采用定性和定量相结合的混合方法设计。对参与者的母亲进行了深入的面对面半结构化访谈。研究的定性和定量部分包括使用扎里特照顾者负担量表进行负担评估。对回答进行转录，并确定主题。
就对该疾病的理解而言，确定的主要主题是“从教师那里了解到孩子的问题，但在线学习让我亲眼看到了孩子的问题”以及“了解这种疾病，但更多的时间促进了情感联系并增进了对孩子的理解”。当被问及所面临的负担时，出现的主要主题是“全天候照顾孩子导致疲惫加剧”以及“因对孩子、学校和家庭感到愤怒和烦躁而负担加重”。扎里特照顾者问卷显示，大流行前后照顾负担存在统计学上的显著差异，更多母亲属于轻度至中度和重度负担类别。
COVID-19大流行增加了ADHD儿童母亲的照顾负担。她们对孩子疾病的理解显著增加，因为她们可以花更多时间，并想出不同的方法来帮助孩子在学业和其他方面取得进步。
