Division of Cardiology, Department of Pediatrics, The Hospital for Sick Children, Toronto, Canada.
Department of Pediatrics, University of Toronto, Toronto, Canada.
Pediatr Cardiol. 2024 Apr;45(4):703-709. doi: 10.1007/s00246-024-03431-x. Epub 2024 Feb 22.
Decision-making in fetal cardiology is fraught with ethical issues yet education in bioethics for trainees is limited or nonexistent. In this innovation report, we describe the development of a fetal cardiology bioethics curriculum designed to address this gap. The curriculum was developed to supplement the core curriculum for cardiology fellows and fetal cardiology subspecialty trainees. The series combines didactic and interactive teaching modalities and contains 5 key components: (1) introduction to bioethics and its role in fetal cardiology, (2) counseling and pathways for compassionate terminal care, (3) case vignette-based ethical analysis and discussion cases, (4) fetal counseling considerations for shared decision-making and recommendations, (5) facilitated communications role play. The curriculum was refined using session evaluations from end users. This report describes the innovative curriculum as a starting point for further incorporation and study of bioethical education in pediatric cardiology and fetal training programs.
胎儿心脏病学中的决策充满了伦理问题,但对受训者进行生物伦理学教育的机会有限或根本不存在。在这份创新报告中,我们描述了胎儿心脏病学生物伦理学课程的开发,旨在解决这一差距。该课程旨在补充心脏病学研究员和胎儿心脏病学亚专业受训者的核心课程。该系列课程结合了理论教学和互动教学模式,包含 5 个关键组成部分:(1) 生物伦理学及其在胎儿心脏病学中的作用简介,(2) 富有同情心的终末期护理咨询和途径,(3) 基于病例描述的伦理分析和讨论案例,(4) 用于共同决策和建议的胎儿咨询注意事项,(5) 促进沟通角色扮演。该课程使用最终用户的课程评估进行了改进。本报告介绍了这一创新课程,作为在儿科心脏病学和胎儿培训计划中进一步纳入和研究生物伦理教育的起点。