Clinic for Internal Medicine I, University Hospital, Technical University, Dresden, Germany.
Research Group Ethics in Medicine, Faculty of Medicine, Philipps-University Marburg, Marburg, Germany.
Support Care Cancer. 2024 Feb 22;32(3):181. doi: 10.1007/s00520-024-08354-0.
Studies that focus on improving the difficult process of breaking bad news in oncology should include the patient perspective and be guided by appropriate outcome measures. Endpoints such as "patient satisfaction" fall short to capture the complex nature of breaking bad news (BBN) conversations. However, this is true of many studies. The present study attempts to develop a framework model from a new, patient-centered perspective, which can be applied equally in clinical practice and in education.
Semi-structured in-depth interviews with twelve cancer patients were conducted. Transcripts were analyzed by "qualitative content analysis" following Mayring. Outcomes were further extrapolated in interpretational steps, and a model of "success" from patients view in BBN was developed.
Two central needs of the patients could be identified: understanding and feelings. Their fulfillment depends on two groups of variables: first, structural characteristics, such as the inevitable shock, individuality, and processability; second, strongly influenceable variables, such as relationship, transfer of knowledge, and atmosphere. From these results, a framework model for successful breaking of bad news from the patient's perspective was developed: The successful delivery process model (SDP model).
As a basic model for the framework for breaking bad news from the patient's perspective, the SDP model can be applied to many different situations in oncology and help to frame the difficult conversations by tailoring the BBN conversations on determinants that favorably influence the process in a patient centered manner. In this sense, the model can be useful in clinical practice as well as in education.
关注改善肿瘤学中艰难告知坏消息过程的研究应该纳入患者视角,并以适当的结果衡量标准为指导。终点指标如“患者满意度”不足以捕捉到告知坏消息(BBN)谈话的复杂性。然而,许多研究都存在这种情况。本研究试图从新的以患者为中心的角度构建一个框架模型,该模型可以在临床实践和教育中同等应用。
对 12 名癌症患者进行了半结构化深入访谈。采用迈林的“定性内容分析”对转录本进行分析。结果进一步通过解释性步骤进行推断,从患者角度在 BBN 中开发了一个“成功”模型。
确定了患者的两个核心需求:理解和感受。它们的满足取决于两组变量:首先是结构特征,如不可避免的冲击、个体性和可处理性;其次是强烈可影响的变量,如关系、知识转移和氛围。基于这些结果,从患者角度开发了一个成功告知坏消息的框架模型:成功传递过程模型(SDP 模型)。
作为从患者角度告知坏消息的框架的基本模型,SDP 模型可应用于肿瘤学中的许多不同情况,并通过以患者为中心的方式调整 BBN 谈话来影响过程的有利决定因素,从而帮助构建这些艰难的对话。从这个意义上说,该模型在临床实践和教育中都可能有用。