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An emotional roller coaster - family members' experiences of being a caregiver throughout a cancer trajectory.情感过山车——癌症病程中家庭成员作为照顾者的体验。
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The effectiveness of psychoeducational interventions on caregiver-oriented outcomes in caregivers of adult cancer patients: A systematic review and meta-analysis.心理教育干预对成年癌症患者照料者以照料者为导向的结局的有效性:一项系统评价与荟萃分析。
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Eur J Cancer Care (Engl). 2022 Nov;31(6):e13726. doi: 10.1111/ecc.13726. Epub 2022 Oct 12.
7
Systematic translation and adaptation of the FOCUS program, a USA-based supportive intervention for persons with cancer and their family caregivers, for use in six European countries.系统地翻译和改编了 FOCUS 项目,这是一个基于美国的针对癌症患者及其家庭照顾者的支持性干预措施,用于六个欧洲国家。
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8
Supportive Care Needs and the Impact of Loss of Functioning and Symptom Burden on the Quality of Life in Patients with Advanced Colorectal Cancer.晚期结直肠癌患者的支持性护理需求以及功能丧失和症状负担对生活质量的影响。
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癌症文献中支持性护理需求构建的批判性概述:定义、测量、干预措施以及未来研究方向。

A Critical Overview of the Construct of Supportive Care Need in the Cancer Literature: Definitions, Measures, Interventions and Future Directions for Research.

机构信息

'Rita Levi Montalcini' Department of Neuroscience, University of Turin, 10126 Turin, Italy.

出版信息

Int J Environ Res Public Health. 2024 Feb 12;21(2):215. doi: 10.3390/ijerph21020215.

DOI:10.3390/ijerph21020215
PMID:38397704
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10887927/
Abstract

The growing amount of evidence about the role of supportive care in enhancing cancer patients' outcomes has made healthcare providers more sensitive to the need for support that they experience during cancer's trajectory. However, the lack of a consensus in the definition of supportive care and lack of uniformity in the theoretical paradigm and measurement tools for unmet needs does not allow for defined guidelines for evidence-based best practices that are universally accepted. Contemporary cancer literature confirms that patients continue to report high levels of unmet supportive care needs and documents the low effectiveness of most of the interventions proposed to date. The aim of this critical review is to consolidate the conceptual understanding of the need for supportive care, providing definitions, areas of expertise and a careful overview of the measurement tools and intervention proposals developed to date. The possible reasons why the currently developed interventions do not seem to be able to meet the needs, and the issues for future research were discussed.

摘要

支持性护理在改善癌症患者预后方面的作用的证据越来越多,这使得医疗保健提供者更加关注他们在癌症病程中所经历的支持需求。然而,支持性护理的定义缺乏共识,未满足需求的理论范式和测量工具也缺乏统一性,因此无法制定普遍接受的循证最佳实践的明确指南。当代癌症文献证实,患者继续报告高水平的未满足的支持性护理需求,并记录了迄今为止提出的大多数干预措施的效果较低。本批判性综述的目的是整合对支持性护理需求的概念理解,提供定义、专业领域,并仔细概述迄今为止开发的测量工具和干预措施提案。讨论了目前开发的干预措施似乎无法满足需求的可能原因,以及未来研究的问题。