Patient and Family Education, National Cancer Centre Singapore, Singapore, Singapore
Division of Division of Community Outreach and Philanthropy, National Cancer Centre Singapore, Singapore, Singapore.
BMJ Open. 2020 Feb 28;10(2):e034178. doi: 10.1136/bmjopen-2019-034178.
To qualitatively interpret the information and supportive care needs perceived by cancer patients undergoing treatment in order to get a deeper appreciation of patients' needs and concerns. The intended outcome is to provide baseline knowledge for improving patient-centred strategies to better meet the information and supportive needs of patients.
A qualitative research approach, based on conventional content analysis, was used throughout the research process. The three open-ended questions obtained from a previous quantitative study guided the researchers to explore the information and supportive care needs of patients. Data from patients' responses were analysed and coded in themes.
Patients attending the Ambulatory Treatment Unit of the National Cancer Centre Singapore were invited to participate in the study. We determined from these subjects the type of information that cancer patients need, and to measure the extent to which these information needs are met by measuring patients' level of satisfaction. Included in the quantitative study were three open-ended questions designed to gain a deeper understanding of their needs and concerns. All subjects were aged 21 years and above and able to understand and communicate in English/Mandarin. They were also aware of their diagnosis, they were not cognitively impaired and were not at the end-of-life situation.
A variety of information and supportive care needs were identified, and three specific areas of concerns were identified: (1) psychosocial and supportive care needs, (2) information needs and (3) information delivery by professionals.
The information and supportive care needs expressed were consistent with issues of cancer patients undergoing treatment. The strategies to improve patients' coping abilities through patient-centred care are discussed. Further studies assessing the barriers of information provision by healthcare professionals should provide more detailed knowledge about unmet information needs.
定性解释正在接受治疗的癌症患者感知到的信息和支持性护理需求，以更深入地了解患者的需求和关注点。预期结果是为改善以患者为中心的策略提供基线知识，以更好地满足患者的信息和支持性需求。
在整个研究过程中，使用了基于常规内容分析的定性研究方法。从先前的定量研究中获得的三个开放式问题指导研究人员探索患者的信息和支持性护理需求。对患者回答的数据进行分析和编码，并归纳为主题。
邀请新加坡国家癌症中心门诊治疗部的患者参与研究。我们从这些患者中确定了癌症患者需要的信息类型，并通过衡量患者的满意度来衡量这些信息需求的满足程度。定量研究中包含了三个旨在更深入了解他们的需求和关注点的开放式问题。所有受试者年龄均在 21 岁及以上，能够理解和用英语/普通话进行交流。他们也了解自己的诊断，没有认知障碍，也不在生命末期。
确定了各种信息和支持性护理需求，并确定了三个关注领域：（1）心理社会和支持性护理需求，（2）信息需求，（3）专业人员提供的信息。
表达的信息和支持性护理需求与接受治疗的癌症患者的问题一致。讨论了通过以患者为中心的护理来提高患者应对能力的策略。进一步评估医疗保健专业人员提供信息障碍的研究应提供有关未满足信息需求的更详细知识。
