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患有 22q11.2 缺失综合征儿童的母亲的心理健康、应对方式和保护因素。

Mental health, coping, and protective factors in mothers of children with 22q11.2 deletion syndrome.

机构信息

Department of Psychology, Syracuse University, Syracuse, New York, USA.

Department of Psychiatry and Biobehavioral Sciences and Psychology, UCLA Semel Institute for Neuroscience and Human Behavior, Los Angeles, California, USA.

出版信息

Am J Med Genet B Neuropsychiatr Genet. 2024 Sep;195(6):e32973. doi: 10.1002/ajmg.b.32973. Epub 2024 Feb 26.

Abstract

Compared to the large body of maternal mental health research for other pediatric disorders, we know far less about the experience of mothers of children with 22q11DS. This study investigates the coping methods, protective factors, and mental health of this population. These findings might lead to better support for 22q11DS maternal mental health. An international sample of 71 mothers (M = 40.5 years) of children with 22q11DS (M = 9.2 years) was recruited and completed an online survey assessing maternal mental health (symptoms of depression, anxiety, traumatic stress, general stress, and alcohol consumption), coping methods, and mental health protective factors (social support, dyadic adjustment, parenting competence). Maternal ratings of child mental health symptoms were also obtained. Mothers' self-report revealed a high percentage who screened positive for elevated levels of general stress (69%), hazardous alcohol consumption (30.9%), traumatic stress (33.8%), anxiety (26.8%), and depression (26.8%). After controlling for demographic variables and child mental health symptoms, maternal self-reported maladaptive coping methods were positively associated with maternal symptoms of depression, anxiety, stress, and traumatic stress. Reducing maladaptive coping methods may be a promising intervention for improving mental health in mothers of children with 22q11DS.

摘要

相较于其他儿科疾病的大量孕产妇心理健康研究,我们对 22q11DS 患儿母亲的体验知之甚少。本研究调查了该人群的应对方式、保护因素和心理健康状况。这些发现可能为更好地支持 22q11DS 产妇心理健康提供依据。本研究招募了一个国际样本,共 71 名患有 22q11DS(患儿平均年龄 9.2 岁)的儿童的母亲(母亲平均年龄 40.5 岁),并完成了一项在线调查,评估了母亲的心理健康状况(抑郁、焦虑、创伤后应激、一般压力和饮酒)、应对方式和心理健康保护因素(社会支持、夫妻关系调整、育儿能力)。还获得了母亲对子女心理健康症状的评估。母亲的自我报告显示,有很高比例的人出现一般压力(69%)、危险饮酒(30.9%)、创伤后应激(33.8%)、焦虑(26.8%)和抑郁(26.8%)的升高。在控制了人口统计学变量和儿童心理健康症状后,母亲自我报告的适应不良应对方式与母亲的抑郁、焦虑、压力和创伤后应激症状呈正相关。减少适应不良的应对方式可能是改善 22q11DS 患儿母亲心理健康的一种有前途的干预措施。

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