Lloyd T, Hastings R P
School of Psychology, University of Wales Bangor, Gwynedd, UK.
J Intellect Disabil Res. 2008 Jan;52(Pt 1):37-48. doi: 10.1111/j.1365-2788.2007.00974.x.
Existing research studies suggest that parenting a child with intellectual disabilities (ID) can be a stressful experience. However, there are few data addressing the question of how or why parents might experience considerable distress. In the present study, psychological variables (acceptance, mindfulness, avoidant coping) are explored that may explain some variance in maternal distress.
Questionnaire data were gathered from mothers of children attending special schools at two time points, 18 months apart (n = 91 at Time 1; n = 57 at Time 2). In addition to measures of the child's functioning, the questionnaire pack included: a measure of acceptance of unwanted thoughts/feelings; a measure of attention to the present (mindfulness); a measure of active avoidance coping; measures of maternal anxiety, depression and stress; and a measure of mothers' positive perceptions of their child.
In cross-sectional analysis, acceptance was negatively associated with maternal anxiety, depression and stress, such that mothers who were generally more accepting reported fewer psychological adjustment problems. Longitudinal analysis showed that acceptance is bidirectionally related to anxiety and depression. Mindfulness was not significantly related to maternal distress, and avoidance coping was positively cross-sectionally associated with depression only. There were no associations between psychological variables and maternal positive perceptions.
These data suggest that acceptance, in particular, may be a construct that explains some variance in maternal distress. Further research could focus on the utility of acceptance-based interventions (e.g. Acceptance and Commitment Therapy) in the support of families with a child with ID.
现有研究表明,养育一名智障儿童可能是一段压力巨大的经历。然而,针对父母可能如何或为何会经历相当大困扰这一问题的数据却很少。在本研究中,探讨了可能解释母亲困扰中一些差异的心理变量(接纳、正念、回避应对)。
在两个时间点收集了就读于特殊学校儿童的母亲的问卷数据,时间间隔为18个月(时间1时n = 91;时间2时n = 57)。除了儿童功能的测量指标外,问卷包还包括:对 unwanted thoughts/feelings 的接纳测量;对当下的关注(正念)测量;积极回避应对测量;母亲焦虑、抑郁和压力的测量;以及母亲对其孩子的积极看法的测量。
在横断面分析中,接纳与母亲的焦虑、抑郁和压力呈负相关,即总体上更具接纳性的母亲报告的心理调适问题更少。纵向分析表明,接纳与焦虑和抑郁呈双向关联。正念与母亲困扰无显著关联,回避应对仅在横断面与抑郁呈正相关。心理变量与母亲的积极看法之间无关联。
这些数据表明,特别是接纳这一构念可能解释母亲困扰中的一些差异。进一步的研究可以聚焦于基于接纳的干预措施(如接纳与承诺疗法)在支持有智障儿童家庭方面的效用。