• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

Expert consensus achieved on a working core outcome set for cutaneous lupus erythematosus research in survey following the 5th International Conference on Cutaneous Lupus Erythematosus (ICCLE).

作者信息

Zhang Arianna J, Perez-Chada Lourdes M, Werth Victoria P, Merola Joseph F

机构信息

Department of Dermatology, Brigham and Women's Hospital, Boston, Massachusetts, USA.

Harvard Medical School, Boston, Massachusetts, USA.

出版信息

Lupus Sci Med. 2024 Feb 26;11(1):e001165. doi: 10.1136/lupus-2024-001165.

DOI:10.1136/lupus-2024-001165
PMID:38413096
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10900344/
Abstract
摘要

相似文献

1
Expert consensus achieved on a working core outcome set for cutaneous lupus erythematosus research in survey following the 5th International Conference on Cutaneous Lupus Erythematosus (ICCLE).在第五届国际皮肤红斑狼疮会议（ICCLE）之后的调查中，就皮肤红斑狼疮研究的工作核心结局集达成了专家共识。
Lupus Sci Med. 2024 Feb 26;11(1):e001165. doi: 10.1136/lupus-2024-001165.
2
From pathogenesis, epidemiology, and genetics to definitions, diagnosis, and treatments of cutaneous lupus erythematosus and dermatomyositis: a report from the 3rd International Conference on Cutaneous Lupus Erythematosus (ICCLE) 2013.从发病机制、流行病学和遗传学，到皮肤红斑狼疮和皮肌炎的定义、诊断及治疗：2013年第三届国际皮肤红斑狼疮会议（ICCLE）报告
J Invest Dermatol. 2015 Jan;135(1):7-12. doi: 10.1038/jid.2014.316.
3
Development of a working core outcome set for cutaneous lupus erythematosus: a practical approach to an urgent unmet need.制定一个用于红斑狼疮性皮肤病的工作核心结局集：满足一个急迫未满足需求的实用方法。
Lupus Sci Med. 2021 Dec;8(1). doi: 10.1136/lupus-2021-000529.
4
Advances in Cutaneous Lupus Erythematosus and Dermatomyositis: A Report from the 4th International Conference on Cutaneous Lupus Erythematosus-An Ongoing Need for International Consensus and Collaborations.皮肤型红斑狼疮和皮肌炎的进展：第四届国际皮肤型红斑狼疮会议报告——国际共识与合作的持续需求
J Invest Dermatol. 2019 Feb;139(2):270-276. doi: 10.1016/j.jid.2018.08.017. Epub 2018 Sep 19.
5
International exchange on the clinical practice and research of rheumatic skin diseases: A report of the 5th International Conference of Cutaneous Lupus Erythematosus.风湿性皮肤病临床实践与研究的国际交流：第五届红斑狼疮性皮肤病国际会议报告。
J Dermatol. 2024 Jul;51(7):881-884. doi: 10.1111/1346-8138.17153. Epub 2024 Mar 7.
6
[Skin manifestations of lupus erythematosus].[红斑狼疮的皮肤表现]
Ther Umsch. 2005 May;62(5):303-12. doi: 10.1024/0040-5930.62.5.303.
7
Comparing dermatologic patient-reported outcome measures in cutaneous lupus erythematosus.
Lupus Sci Med. 2022 Dec;9(1). doi: 10.1136/lupus-2022-000827.
8
Cutaneous lupus erythematosus: a review of etiopathogenic, clinical, diagnostic and therapeutic aspects.皮肤红斑狼疮：发病机制、临床、诊断和治疗方面的综述。
An Bras Dermatol. 2023 May-Jun;98(3):355-372. doi: 10.1016/j.abd.2022.09.005. Epub 2023 Mar 1.
9
New insights into the progression from cutaneous lupus to systemic lupus erythematosus.对从皮肤狼疮进展到系统性红斑狼疮的新认识。
Expert Rev Clin Immunol. 2020 Aug;16(8):829-837. doi: 10.1080/1744666X.2020.1805316. Epub 2020 Sep 29.
10
A database analysis of cutaneous lupus erythematosus with the EUSCLE Core Set Questionnaire.基于 EUSCLE 核心问卷的红斑狼疮数据库分析。
Acta Derm Venereol. 2010 Jul;90(4):386-94. doi: 10.2340/00015555-0879.

本文引用的文献

1
Development of a working core outcome set for cutaneous lupus erythematosus: a practical approach to an urgent unmet need.制定一个用于红斑狼疮性皮肤病的工作核心结局集：满足一个急迫未满足需求的实用方法。
Lupus Sci Med. 2021 Dec;8(1). doi: 10.1136/lupus-2021-000529.
2
Report of the Skin Research Working Groups From the GRAPPA 2020 Annual Meeting.GRAPPA 2020 年会皮肤研究工作组报告。
J Rheumatol Suppl. 2021 Jun;97:10-16. doi: 10.3899/jrheum.201668.
3
The CLASI, a validated tool for the evaluation of skin disease in lupus erythematosus: a narrative review.CLASI，一种用于评估红斑狼疮皮肤疾病的有效工具：叙述性综述。
Ann Transl Med. 2021 Mar;9(5):431. doi: 10.21037/atm-20-5048.
4
Evaluating change in disease activity needed to reflect meaningful improvement in quality of life for clinical trials in cutaneous lupus erythematosus.评估疾病活动的变化对于皮肤红斑狼疮临床试验中反映生活质量的有意义改善是必要的。
J Am Acad Dermatol. 2021 Jun;84(6):1562-1567. doi: 10.1016/j.jaad.2020.07.047. Epub 2020 Jul 16.
5
Lupus community panel proposals for optimising clinical trials: 2018.狼疮患者群体关于优化临床试验的建议：2018年
Lupus Sci Med. 2018 Mar 23;5(1):e000258. doi: 10.1136/lupus-2018-000258. eCollection 2018.
6
Core Outcome Measures in Effectiveness Trials (COMET) initiative: protocol for an international Delphi study to achieve consensus on how to select outcome measurement instruments for outcomes included in a 'core outcome set'.有效性试验核心结局指标（COMET）计划：一项国际德尔菲研究的方案，旨在就如何为“核心结局集”中包含的结局选择结局测量工具达成共识。
Trials. 2014 Jun 25;15:247. doi: 10.1186/1745-6215-15-247.
7
OMERACT: an international initiative to improve outcome measurement in rheumatology.OMERACT：一项旨在改善风湿病疗效评估的国际倡议。
Trials. 2007 Nov 26;8:38. doi: 10.1186/1745-6215-8-38.
8
Systemic lupus erythematosus disease activity index 2000.2000年系统性红斑狼疮疾病活动指数
J Rheumatol. 2002 Feb;29(2):288-91.