Ripat Jacquie, Nixdorf Cherry, Cowley Kristine C
Department of Occupational Therapy, College of Rehabilitation Sciences, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Canada.
Spinal Cord Research Centre, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Canada.
Disabil Rehabil Assist Technol. 2024 Nov;19(8):3166-3171. doi: 10.1080/17483107.2024.2323145. Epub 2024 Mar 4.
Although assistive technology (AT) is recognized as a basic human right, access to AT, and particularly electronic aids to daily living (EADL), is limited. We aimed to understand how persons with high level spinal cord injury (SCI) prioritize EADL needs and assess satisfaction and efficacy of self-identified EADL. Thus, in this case series, we recruited three participants with C4, C5 or C6 SCI receiving in-patient SCI rehabilitation. Each received dedicated occupational therapy-based assistance in identifying EADL items within an unrestricted envelope of support ($5000 CDN) for use in maximizing physical independence and supporting their return to community-based living. Items identified were categorized by need (emergency/security; home environment control; or virtual access to the outside world). Each participant selected distinct EADL. Evaluation of selected EADL items indicated very high satisfaction. The selected EADL contributed to participants' returns to employment, community life, or reduced requirements for attendant services. These findings suggest that identification of essential technology should reflect the unique needs of each person and the context in which it will be used. These findings also support use of mainstream technology to meet EADL needs of individuals with limited physical abilities.
尽管辅助技术(AT)被认为是一项基本人权,但获得 AT,特别是日常生活电子辅助设备(EADL)的机会有限。我们旨在了解高水平脊髓损伤(SCI)患者如何优先考虑 EADL 需求,并评估自我确定的 EADL 的满意度和效果。因此,在本病例系列研究中,我们招募了三名接受住院 SCI 康复治疗的 C4、C5 或 C6 SCI 患者。每个人都在不受限制的支持范围内(5000 加元)获得了专门的基于职业治疗的辅助,以识别 EADL 项目,以最大限度地提高身体独立性并支持他们返回社区生活。识别出的项目按需求进行分类(紧急/安全;家庭环境控制;或虚拟访问外部世界)。每位参与者都选择了独特的 EADL。对选定的 EADL 项目的评估表明非常高的满意度。所选 EADL 有助于参与者恢复就业、社区生活或减少对护理服务的需求。这些发现表明,确定基本技术应反映每个人的独特需求和将其用于的环境。这些发现还支持使用主流技术来满足身体能力有限的个人的 EADL 需求。