Sholler Gary F, Selbie Lisa A, Tallon Mary, Keating Jessica, Ayer Julian, Burchill Luke, Cheung Michael M H, Cordina Rachael, Culnane Evelyn, Donovan Shakira, Eastaugh Lucas, Elliott Caitlin, Fletcher Jeffery, Justo Robert N, Kasparian Nadine A, Kelly Andrew, Morsman Dominique, Nicolae Mugur, Orr Yishay, Pendrick Elle, Ramsay James M, Reményi Bo, Shipton Stephen, Weintraub Robert G, Van Wijk Elsa, Wheaton Gavin, Venugopal Prem
Sydney Children's Hospitals Network, NSW, Australia; Heart Centre for Children, Sydney, NSW, Australia; The University of Sydney, Sydney, NSW, Australia.
HeartKids Ltd, Parramatta, NSW, Australia; School of Biotechnology & Biomolecular Sciences University of NSW, Sydney, NSW, Australia and Johns Hopkins University, Baltimore, MD, USA.
Heart Lung Circ. 2024 Feb;33(2):153-196. doi: 10.1016/j.hlc.2023.03.017. Epub 2024 Feb 9.
These first Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards) have been developed to inform the healthcare requirements for CoHD services and enable all Australian patients, families and carers impacted by CoHD (paediatric CoHD and adult congenital heart disease [ACHD]) to live their best and healthiest lives. The CoHD Standards are designed to provide the clarity and certainty required for healthcare services to deliver excellent, comprehensive, inclusive, and equitable CoHD care across Australia for patients, families and carers, and offer an iterative roadmap to the future of these services. The CoHD Standards provide a framework for excellent CoHD care, encompassing key requirements and expectations for whole-of-life, holistic and connected healthcare service delivery. The CoHD Standards should be implemented in health services in conjunction with the National Safety and Quality Health Service Standards developed by the Australian Commission on Safety and Quality in Health Care. All healthcare services should comply with the CoHD Standards, as well as working to their organisation's or jurisdiction's agreed clinical governance framework, to guide the implementation of structures and processes that support safe care.
这些首批澳大利亚儿童期心脏病护理国家标准(CoHD标准)的制定,旨在明确CoHD服务的医疗保健要求,并使所有受儿童期心脏病(儿科CoHD和成人先天性心脏病[ACHD])影响的澳大利亚患者、家庭和护理人员能够过上最美好、最健康的生活。CoHD标准旨在为医疗服务提供清晰度和确定性,以便在澳大利亚为患者、家庭和护理人员提供卓越、全面、包容和平等的CoHD护理,并为这些服务的未来提供一个迭代路线图。CoHD标准为卓越的CoHD护理提供了一个框架,涵盖了对全生命周期、整体和连贯医疗服务提供的关键要求和期望。CoHD标准应与澳大利亚医疗保健安全与质量委员会制定的《国家安全与质量健康服务标准》一起在卫生服务中实施。所有医疗服务都应遵守CoHD标准,并按照其组织或辖区商定的临床治理框架开展工作,以指导支持安全护理的结构和流程的实施。