Center for Successful Aging, College of Health and Human Services, California State University Long Beach, Long Beach, CA, USA.
Cuban Research Institute, Florida International University, Miami, FL, USA.
J Appl Gerontol. 2024 Sep;43(9):1251-1258. doi: 10.1177/07334648241234982. Epub 2024 Mar 7.
The American healthcare system is ill-fitted to meet the needs of the growing population with Alzheimer's and Related Dementias (ADRD) and their caregivers, which disproportionately affects Latinos. This paper describes the caregiving process for Latino patients with ADRD from the perspective of caregivers and service providers to reveal service areas in need of improvement. Ten providers and 24 Latino caregivers were interviewed through the Miami-Dade County Aging Network. Interviews were analyzed using a grounded theory approach. Five themes emerged: lack of social service connectivity, case management challenges, unmet mental health needs, language barriers, and the need for alternative service models. Our analysis indicates insufficient training and the need to improve dementia competencies, support strategies, and understanding of cultural nuances among service providers. These findings can help inform the development of a required ADRD provider education curriculum that incorporates cultural competency training to improve the quality and effectiveness of care.
美国的医疗保健系统难以满足不断增长的阿尔茨海默病及相关痴呆症(ADRD)患者及其护理人员的需求,而这一问题对拉丁裔人群的影响尤为严重。本文从护理人员和服务提供者的角度描述了拉丁裔 ADRD 患者的护理过程,以揭示需要改进的服务领域。通过迈阿密戴德县老龄化网络,对 10 名服务提供者和 24 名拉丁裔护理人员进行了访谈。采用扎根理论方法对访谈进行了分析。出现了五个主题:社会服务联系不足、个案管理挑战、心理健康需求未得到满足、语言障碍以及需要替代服务模式。我们的分析表明,服务提供者的培训不足,需要提高痴呆症能力、支持策略以及对文化细微差别的理解。这些发现可以帮助制定所需的 ADRD 提供者教育课程,纳入文化能力培训,以提高护理的质量和效果。