Pinzon Maria Mora, Garcia Diana Martinez, Perales-Puchalt Jaime
Department of Geriatrics and Gerontology, School of Medicine and Public Health, University of Wisconsin - Madison, Madison, WI, USA.
Wisconsin Alzheimer's Institute, University of Wisconsin - Madison, Madison, WI, USA.
medRxiv. 2025 Apr 3:2025.03.27.25324793. doi: 10.1101/2025.03.27.25324793.
Latino individuals bear a disproportionate burden of Alzheimer's disease and related dementias (ADRD), with higher risk, underdiagnosis, and limited access to quality care. Primary care providers (PCPs) are crucial for early detection and management. However, organizational and policy factors significantly impact their ability to provide culturally competent and equitable ADRD care for this community. This study explores PCP perspectives on these organizational and policy factors to inform the development of accessible models that improve early diagnosis, preventive care, and quality of life for Latino individuals with ADRD.
We used thematic analysis to analyze qualitative interviews with 23 diverse PCPs across the USA. We recruited our sample using snowball sampling. We strengthened the validity of our findings by using rigorous data reduction techniques.
Key themes emerged highlighting the interplay of organizational and policy factors: 1) Insurance eligibility and care options for those uninsured were foremost, with mandated language services facing access and quality challenges that affected the ability of clinicians to perform an accurate diagnosis. 2) Staffing and available resources dictated the type of care offered, leading to inconsistent protocols and options. Providers reported that workup was influenced by their level of training, time availability, and comfort. 3) While recognized as crucial, comprehensive assessments that include evaluation of their home and social environment were limited by appointment constraints and lack of follow-up resources.
Economic and organizational factors, including insurance, costs, staffing models, and resource navigation, shape PCPs' ability to deliver culturally competent and equitable ADRD care. Future interventions should address these barriers by training PCPs in diagnostic procedures in Latino communities and developing accessible service models and culturally appropriate diagnostic tools.
拉丁裔个体承受着不成比例的阿尔茨海默病及相关痴呆症(ADRD)负担,患病风险更高、诊断不足且获得优质护理的机会有限。初级保健提供者(PCP)对于早期发现和管理至关重要。然而,组织和政策因素显著影响他们为该社区提供具有文化胜任力和公平的ADRD护理的能力。本研究探讨初级保健提供者对这些组织和政策因素的看法,以为开发可及的模式提供信息,从而改善患有ADRD的拉丁裔个体的早期诊断、预防保健和生活质量。
我们采用主题分析法分析了对美国23名不同的初级保健提供者进行的定性访谈。我们通过滚雪球抽样招募样本。我们使用严格的数据简化技术来加强研究结果的有效性。
出现了一些关键主题,突出了组织和政策因素的相互作用:1)保险资格以及未参保者的护理选择最为重要,法定语言服务面临获取和质量方面的挑战——这影响了临床医生进行准确诊断的能力。2)人员配备和可用资源决定了所提供护理的类型,导致方案和选择不一致。提供者报告称,检查工作受到他们的培训水平、可利用时间和舒适度的影响。3)虽然被认为至关重要,但包括对其家庭和社会环境评估在内的全面评估受到预约限制和缺乏后续资源的限制。
经济和组织因素,包括保险、成本、人员配备模式和资源导航,塑造了初级保健提供者提供具有文化胜任力和公平的ADRD护理的能力。未来的干预措施应通过在拉丁裔社区对初级保健提供者进行诊断程序培训以及开发可及的服务模式和符合文化习惯的诊断工具来解决这些障碍。