Adelante Centre of Expertise in Rehabilitation and Audiology, Hoensbroek, the Netherlands; Department of Rehabilitation Medicine Research School CAPHRI, Maastricht University, Maastricht, the Netherlands.
Adelante Centre of Expertise in Rehabilitation and Audiology, Hoensbroek, the Netherlands; Department of Rehabilitation Medicine Research School CAPHRI, Maastricht University, Maastricht, the Netherlands; Department of Rehabilitation Medicine, Zuyderland, Heerlen, the Netherlands.
Patient Educ Couns. 2024 Jun;123:108221. doi: 10.1016/j.pec.2024.108221. Epub 2024 Feb 21.
to investigate changes in caregiver strain, mental health complaints and QoL in caregivers of COVID-19 ICU survivors in the first year after discharge, and their associations with patients' participation and quality of life.
Post-ICU COVID-19 survivors, needing inpatient rehabilitation and their informal caregivers were included. Caregiver self-administered questionnaires included quality of life, self-rated health, caregiver strain, anxiety and depression symptoms, post-traumatic stress and coping style. Patients' participation in society was assessed and quality of life.
67 patients (78% male) and 57 caregivers (23.6% male) were included. Three months post-ICU, caregivers experienced caregiver strain (32%), anxiety (41%), depressive symptoms (16%) and PTSD (24%). One year post-ICU, rates decreased, still being 11%, 26%, 10% and 5%, respectively. Caregiver anxiety symptoms and self-rated health at three months were associated with worse patient levels of participation and quality of life one year after ICU discharge (p < 0.05).
COVID-19 caregivers experience high levels of mental health complaints one year after a patient's ICU discharge. Furthermore, our results indicate that patient participation levels and quality of life one year after ICU discharge may be negatively associated by caregiver complaints.
Counselling and routine assessment of emotional complaints and unmet needs of the informal caregiver should be incorporated and addressed in the rehabilitation treatment of (COVID-19) post-ICU patients.
调查 COVID-19 重症监护病房幸存者出院后第一年照顾者的压力、精神健康问题和生活质量的变化，并探讨其与患者的参与和生活质量的关系。
纳入需要住院康复治疗的 COVID-19 重症监护病房幸存者及其非专业照顾者。照顾者通过自我报告的问卷评估生活质量、自我健康评估、照顾者压力、焦虑和抑郁症状、创伤后应激和应对方式。评估患者的社会参与情况和生活质量。
共纳入 67 名患者（78%为男性）和 57 名照顾者（23.6%为男性）。重症监护病房后 3 个月，照顾者经历了照顾者压力（32%）、焦虑（41%）、抑郁症状（16%）和创伤后应激（24%）。重症监护病房后 1 年，这些比率分别下降至 11%、26%、10%和 5%。3 个月时照顾者的焦虑症状和自我健康评估与重症监护病房后 1 年患者的参与水平和生活质量较差相关（p<0.05）。
COVID-19 照顾者在患者出院后 1 年经历了较高水平的精神健康问题。此外，我们的研究结果表明，照顾者的抱怨可能与患者出院后 1 年的参与水平和生活质量呈负相关。
应该将对非专业照顾者的情绪抱怨和未满足需求的咨询和常规评估纳入 COVID-19 重症监护病房患者的康复治疗中。
