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本文引用的文献

1
"None of us are lying": an interpretive description of the search for legitimacy and the journey to access quality health services by individuals living with Long COVID.“我们都没有撒谎”:对长新冠患者寻求合法性和获得优质医疗服务之旅的解释性描述。
BMC Health Serv Res. 2023 Dec 12;23(1):1396. doi: 10.1186/s12913-023-10288-y.
2
Conceptualising the episodic nature of disability among adults living with Long COVID: a qualitative study.成人长新冠患者残疾的发作性特征概念化:一项定性研究。
BMJ Glob Health. 2023 Mar;8(3). doi: 10.1136/bmjgh-2022-011276.
3
Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review.迈向基于证据和包容的长新冠同伴支持模式:诠释学系统评价。
Soc Sci Med. 2023 Mar;320:115669. doi: 10.1016/j.socscimed.2023.115669. Epub 2023 Jan 14.
4
Telerehabilitation, A Viable Option in Patients with Persistent Post-COVID Syndrome: A Systematic Review.远程康复:持续性新冠后综合征患者的可行选择:一项系统综述
Healthcare (Basel). 2023 Jan 7;11(2):187. doi: 10.3390/healthcare11020187.
5
Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort with the post-COVID-19 syndrome.使用结构化运动方案对长队列新冠后综合征患者体力活动后症状恶化和健康状况的影响。
J Med Virol. 2023 Jan;95(1):e28373. doi: 10.1002/jmv.28373.
6
Scoping review of rehabilitation care models for post COVID-19 condition.新冠后疾病康复护理模式的范围性综述。
Bull World Health Organ. 2022 Nov 1;100(11):676-688. doi: 10.2471/BLT.22.288105. Epub 2022 Oct 3.
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What is Safe Long COVID Rehabilitation?什么是安全的新冠长期症状康复?
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Development of a Novel Care Rehabilitation Pathway for Post-COVID Conditions (Long COVID) in a Provincial Health System in Alberta, Canada.开发一种针对加拿大阿尔伯塔省省级卫生系统中新冠后状况(长新冠)的新型护理康复途径。
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9
Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study.探索英国经历长新冠的成年人的在线同伴支持小组:定性访谈研究。
J Med Internet Res. 2022 May 20;24(5):e37674. doi: 10.2196/37674.
10
Factors shaping the mental health and well-being of people experiencing persistent COVID-19 symptoms or 'long COVID': qualitative study.影响持续出现新冠病毒病症状或“长新冠”患者心理健康和幸福感的因素:定性研究
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“我必须了解它,我必须找到它,我必须知道如何获得它”:长期新冠患者获得康复服务的经历

"I Had to Know About It, I Had to Find It, I Had to Know How to Access it": Experiences of Access to Rehabilitation Services Among People Living with Long COVID.

作者信息

Hung Pam, Brehon Katelyn, Miciak Maxi, Brown Darren A, Bostick Geoffrey, Brown Cary, Churchill Katie, Hall Mark, Hoddinott Lance, Hudon Anne, Hunter Simone, Perreault Kadija, Wieler Marguerite, Skolnik Kate, Lam Grace Y, Weatherald Jason, Gross Douglas P

机构信息

From the: Rehabilitation Research Centre, University of Alberta, Edmonton, Alberta, Canada.

Chelsea and Westminster Hospital NHS Foundation Trust, London, England, United Kingdom of Great Britain and Northern Ireland.

出版信息

Physiother Can. 2024 Mar 6;76(1):8-24. doi: 10.3138/ptc-2023-0021. eCollection 2024 Feb.

DOI:10.3138/ptc-2023-0021
PMID:38465303
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10919370/
Abstract

PURPOSE

The aim of this qualitative study is to understand the need for, access to, and quality of rehabilitation services for people living with Long COVID. Little is known about the experiences of people living with Long COVID accessing rehabilitation services. Therefore, we explored health concerns leading people living with Long COVID to seek help to address functional concerns and their experiences with accessing and participating in rehabilitation.

METHOD

Interpretive description guided exploration of participants' experiences with Long COVID rehabilitation in Alberta, Canada. Semi-structured interviews were completed with 56 participants recruited from: three publicly funded Long COVID clinics, a specialized private physiotherapy clinic, a telephone-based rehabilitation advice line, and a Workers' Compensation Board-funded Long COVID rehabilitation program. Recruitment through mass media coverage allowed us to include people who did not access rehabilitation services. Data analysis was informed by Braun and Clarke's reflexive thematic analysis.

RESULTS

Four themes were identified: (1) the burden of searching for guidance to address challenges with functioning and disability; (2) supportive relationships promote engagement in rehabilitation; (3) conditions for participation in safe rehabilitation; and (4) looking forward - provision of appropriate interventions at the right time.

CONCLUSIONS

Our findings highlight the experiences of accessing rehabilitation services for people living with Long COVID. Results suggest approaches to Long COVID rehabilitation should be accessible, multi-disciplinary, flexible, and person-centred.

摘要

目的

这项定性研究的目的是了解长期新冠患者对康复服务的需求、获取情况及服务质量。对于长期新冠患者获取康复服务的经历,我们知之甚少。因此,我们探讨了导致长期新冠患者寻求帮助以解决功能问题的健康问题,以及他们在获取和参与康复方面的经历。

方法

采用诠释性描述法,对加拿大艾伯塔省长期新冠患者的康复经历进行探索。对从以下渠道招募的56名参与者进行了半结构化访谈:三个由公共资金资助的长期新冠诊所、一家专门的私人物理治疗诊所、一条基于电话的康复咨询热线,以及一个由工人赔偿委员会资助的长期新冠康复项目。通过大众媒体报道进行招募,使我们能够纳入未获取康复服务的人群。数据分析采用了布劳恩和克拉克的反思性主题分析法。

结果

确定了四个主题:(1)为应对功能和残疾挑战而寻求指导的负担;(2)支持性的关系促进康复参与;(3)参与安全康复的条件;(4)展望——在合适的时间提供适当的干预措施。

结论

我们的研究结果突出了长期新冠患者获取康复服务的经历。结果表明,长期新冠康复的方法应易于获取、多学科、灵活且以患者为中心。